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Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

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Employees Everylife Foundation for Rare Diseases Julia Jenkins

Julia Jenkins

OfficerTrustee/director

President and Executive Director at Everylife Foundation for Rare Diseases

Fiscal year ended December 31, 2023. Published on January 25, 2026.

$296,175
2023

Total compensation

Julia Jenkins has been listed as an employee of Everylife Foundation for Rare Diseases in Form 990 filings since at least fiscal year 2016. Total compensation for Julia Jenkins has increased by 94.5% from 2016 to 2023.

Annual compensation details

$296,175
+13%
President and Executive Director
2023
$274k org
40 hrs/wk
$23k other
--
$262,129
-4.7%
President and Executive Director
2022
$244k org
40 hrs/wk
$19k other
--

Total compensation by year

Compare the compensation of Julia Jenkins to:

2023

Other employees at Everylife Foundation for Rare Diseases

Anne Kennedy
Policy and Advocacy
$269,223
$250,269 from orgNo related comp$18,954 other
Megan Pinegar
Chief Operating Officer
$167,938
$153,654 from orgNo related comp$14,284 other
Jamie Sullivan
Sr. Director of Policy
$146,907
$135,524 from orgNo related comp$11,383 other
Shannon von Felden
Sr Director of Adv
$130,375
$117,437 from orgNo related comp$12,938 other
Edward Brasfield
Sr Director of Develop
$129,089
$120,732 from orgNo related comp$8,357 other
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Revisions to this profile

January 25, 2026:
2023 Everylife Foundation for Rare Diseases 990 published
January 25, 2026:
2022 Everylife Foundation for Rare Diseases 990 published
January 25, 2026:
2021 Everylife Foundation for Rare Diseases 990 published

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