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Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

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Employees Dysautonomia Foundation Inc. Dba Familial Dysautonomia Foundation Lanie Etkind

Lanie Etkind

Officer

Executive Director at Dysautonomia Foundation Inc. Dba Familial Dysautonomia Foundation

Fiscal year ended December 31, 2024. Published on January 25, 2026.

$302,431
2024

Total compensation

Lanie Etkind has been listed as an employee of Dysautonomia Foundation Inc. Dba Familial Dysautonomia Foundation in Form 990 filings since fiscal year 2017. Total compensation for Lanie Etkind has increased by 654.6% from 2017 to 2024.

Annual compensation details

$302,431
+19.4%
Executive Director
2024
$267k
40 hrs/wk
$36k
--
$253,266
-10%
Executive Director
2023
$225k
40 hrs/wk
$29k
--
$281,357
+7.1%
Executive Director
2022
$235k
40 hrs/wk
$47k
--
$262,655
+3.6%
Executive Director
2021
$219k
40 hrs/wk
$45k
--
$253,428
+11.2%
Executive Director
2020
$208k
40 hrs/wk
$46k
--
$227,988
+30.7%
Executive Director
2019
$189k
40 hrs/wk
$40k
--
$174,498
+335.4%
Executive Director
2018
$153k
40 hrs/wk
$23k
--
$40,080
Executive Director
2017
$33k
40 hrs/wk
$8k
--

Total compensation by year

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Revisions to this profile

January 25, 2026:
2024 Dysautonomia Foundation Inc. Dba Familial Dysautonomia Foundation 990 published
January 25, 2026:
2023 Dysautonomia Foundation Inc. Dba Familial Dysautonomia Foundation 990 published
January 25, 2026:
2022 Dysautonomia Foundation Inc. Dba Familial Dysautonomia Foundation 990 published

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