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Organizations Health Care Alport Syndrome Foundation Inc.

Alport Syndrome Foundation Inc.

Fiscal year ending 2024. Filed on October 5, 2025.

PO Box 4130
Scottsdale, Arizona 85261

Alport Syndrome Foundation Inc. (EIN: 20-8237159) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2024 IRS Form 990 filing, Alport Syndrome Foundation Inc., a 501(c)(3) charitable organization, reported compensation for 1 out of 5 total employees. Among the employees shown here, the average compensation is $105,000. The highest compensated employee at Alport Syndrome Foundation Inc. is Lisa Bonebrake with fiscal year 2024 compensation of $105,000.

Revenue, expenses, and employee compensation

Revenue

$1,194,735

Expenses

$1,003,948

Employee compensation

$376,180
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Lisa Bonebrake
Executive Director
$105,000
$105,000 No related compNo other comp

Benchmark Employee Compensation

Non-Employee Board Members

Amy Rhodes
Director
Andrew Kronenberg
Board Chair
Daniel Kilpatrick
Treasurer
December West
Director
Marty Dunleavy
Director
Phillip Kumnick
Director
Ryan Linder
Secretary
Sharon Lagas
Co-Founder, Director PAST Chair
Stephen Malach
Director

Mission Statement

THE FOUNDATION WAS CREATED TO EDUCATE AND SUPPORT PATIENTS AND FAMILIES THAT HAVE BEEN AFFECTED BY THIS GENETIC KIDNEY DISEASE WITH A GOAL OF FUNDING RESEARCH, TO FIND MORE EFFECTIVE TREATMENT PROTOCOLS AND TO ULTIMATELY FIND A CURE.

Revisions to this organization profile

October 5, 2025:
2024 Alport Syndrome Foundation Inc. 990 filed
November 11, 2024:
2023 Alport Syndrome Foundation Inc. 990 filed
September 14, 2023:
2022 Alport Syndrome Foundation Inc. 990 filed

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