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Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

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Organizations Health Care Alport Syndrome Foundation Inc.

Alport Syndrome Foundation Inc.

Fiscal year ending 2019. Filed on November 3, 2020.

PO Box 4130
Scottsdale, Arizona 85261

Alport Syndrome Foundation Inc. (EIN: 20-8237159) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2019 IRS Form 990 filing, Alport Syndrome Foundation Inc., a 501(c)(3) charitable organization, reported compensation for 2 out of 2 total employees. Among the employees shown here, the average compensation is $76,613. The highest compensated employee at Alport Syndrome Foundation Inc. is Gina Parziale with fiscal year 2019 compensation of $76,613.

Revenue, expenses, and employee compensation

Revenue

$552,035

Expenses

$656,048

Employee compensation

$87,776
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Gina Parziale
Executive Director to 7/2019
$76,613
$73,815 No related comp$2,798
Lisa Bonebrake
EXEC Director FROM 8/2019/ Dir.Comm. to 7/2019
$0

Benchmark Employee Compensation

Non-Employee Board Members

Andre Weinstock
Director
Andrew Kronenberg
Chair
Janine Reed
Director FROM 12/2019
Jennifer Beauchamp
Director FROM 2/2019
Martin Dunleavy
Treasurer
Phillip Kumnick
Director
Ryan Linder
Secretary
Sharon Lagas
Co-Founder PAST Chair

Mission Statement

THE FOUNDATION WAS CREATED TO EDUCATE AND SUPPORT PATIENTS AND FAMILIES THAT HAVE BEEN AFFECTED BY THIS GENETIC KIDNEY DISEASE WITH A GOAL OF FUNDING RESEARCH, TO FIND MORE EFFECTIVE TREATMENT PROTOCOLS AND TO ULTIMATELY FIND A CURE.

Revisions to this organization profile

October 5, 2025:
2024 Alport Syndrome Foundation Inc. 990 filed
November 11, 2024:
2023 Alport Syndrome Foundation Inc. 990 filed
September 14, 2023:
2022 Alport Syndrome Foundation Inc. 990 filed

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