Compensation 990

Amyotrophic Lateral Sclerosis Association

Fiscal year ending 2017. Filed on June 13, 2017.

1275 K Street NW
Neurology 13400 East Shea Boulevard
Washington, District of Columbia 20005

Amyotrophic Lateral Sclerosis Association (EIN: 13-3271855), also known as The ALS Association, has filed an IRS Form 990 between fiscal years 2017 and 2025. In its fiscal year 2017 IRS Form 990 filing, Amyotrophic Lateral Sclerosis Association, a 501(c)(3) charitable organization, reported compensation for 13 out of 97 total employees. Among the employees shown here, the average compensation is $196,349. The highest compensated employee at Amyotrophic Lateral Sclerosis Association is Barbara Newhouse with fiscal year 2017 compensation of $326,750.

Revenue, expenses, and employee compensation

Revenue

$30,879,067

Expenses

$34,974,730

Employee compensation

$7,901,975
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Barbara Newhouse
President and Chief Executive Officer
$326,750
$307,024 from orgNo related comp$19,726 other
Stevan W Gibson
Chief Public Policy Officer
$242,302
$233,800 from orgNo related comp$8,502 other
Gregory Mitchell
Executive Vice President, Finance and Administration
$224,188
$216,788 from orgNo related comp$7,400 other
Lance Slaughter
Executive Vice President, Chapter Relations and Governance
$219,995
$203,107 from orgNo related comp$16,888 other
Brian Frederick
Executive Vice President, Communication and Develoment
$196,842
$190,481 from orgNo related comp$6,361 other
Kimberly Hardingmaginnis
Senior Vice President, CARE Services
$192,073
$174,296 from orgNo related comp$17,777 other
Carrie Munk
Vice President, Communications
$189,967
$183,573 from orgNo related comp$6,394 other
Patrick W Wildman
Senior Vice President Public Policy
$187,340
$169,629 from orgNo related comp$17,711 other
David J Hampton II
Senior Vice President, Development
$174,533
$162,430 from orgNo related comp$12,103 other
Mary Bruney
Vice President, Chapter Relations
$158,662
$142,004 from orgNo related comp$16,658 other
Teressa Harris
Vice President, Finance
$158,125
$135,392 from orgNo related comp$22,733 other
Kathi J Kromer
Vice President, Advocacy
$142,166
$135,103 from orgNo related comp$7,063 other

Non-Employee Board Members

Andrew Brophy
Trustee
Cameron Ward
Trustee
Chris W Brussalis
Trustee
Christi Kolarick, Ph.D.
Trustee
Connie Houston
Trustee
Don Casey
Trustee
Douglas Butcher
Chair
Ellyn C Phillips
Secretary
Fred Degrandis
Trustee
John P Krave
Trustee
Judy Pratt, Dmd
Trustee
Kenneth F McGunagle Jr Esp
Trustee

Contractors

Nne Marketing
Direct Marketing
$345,000
Faegre Baker Daniels LLP
Consultant Cdc Grant and Public Policy Ser
$326,061
Lucie Bruijn
Scientific Officer Research Oversight
$290,000
Beaconfire Consulting Inc.
Website Design
$182,181
Optimal Networks
IT and Network
$146,306

Mission Statement

THE MISSION OF THE ALS ASSOCIATION IS TO MAKE ALS LIVABLE AND CURE IT.

Revisions to this organization profile

December 11, 2025:
2025 Amyotrophic Lateral Sclerosis Association 990 filed
December 13, 2023:
2023 Amyotrophic Lateral Sclerosis Association 990 filed
August 1, 2022:
2022 Amyotrophic Lateral Sclerosis Association 990 filed

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