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Organizations Diseases, Disorders & Medical Amyotrophic Lateral Sclerosis Association

Amyotrophic Lateral Sclerosis Association

Fiscal year ending 2018. Filed on June 12, 2018.

1275 K Street NW
Washington, District of Columbia 20005

Amyotrophic Lateral Sclerosis Association (EIN: 13-3271855), also known as The ALS Association, has filed an IRS Form 990 between fiscal years 2017 and 2025. In its fiscal year 2018 IRS Form 990 filing, Amyotrophic Lateral Sclerosis Association, a 501(c)(3) charitable organization, reported compensation for 12 out of 102 total employees. Among the employees shown here, the average compensation is $187,797. The highest compensated employee at Amyotrophic Lateral Sclerosis Association is Barbara Newhouse with fiscal year 2018 compensation of $323,179.

Revenue, expenses, and employee compensation

Revenue

$24,669,735

Expenses

$37,818,211

Employee compensation

$7,936,521
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Barbara Newhouse
President/Ceo (Until 12/4/17)
$323,179
$303,316 No related comp$19,863
Gregory Mitchell
Executive Vice President, Finance and Administration
$225,468
$218,987 No related comp$6,481
Calaneet Balas
CEO (12/4/17)
$223,146
$208,761 No related comp$14,385
Lance Slaughter
Executive Vice President, Chapter Relations and Governance
$218,693
$199,203 No related comp$19,490
Brian Frederick
Executive Vice President, Communication and Development
$193,281
$186,022 No related comp$7,259
Kimberly Harding-Maginnis
Senior Vice President, CARE Services
$190,070
$176,961 No related comp$13,109
Kathleen Sheehan
Vice President Public Policy and Advocacy
$171,284
$156,464 No related comp$14,820
Teressa Harris
Vice President, Finance
$157,580
$140,656 No related comp$16,924
Mary Bruney
Vice President, Chapter Relations
$156,314
$144,539 No related comp$11,775
Tina Zeff
Vice President, Development
$143,559
$124,446 No related comp$19,113
Monica santa Cruz
Vice President, Human Resources and Talent Management
$141,858
$136,543 No related comp$5,315
Stephen Goewey
Vice President, Communications
$109,126
$104,888 No related comp$4,238

Benchmark Employee Compensation

Non-Employee Board Members

Cameron Ward, Jd
Trustee
Charles J Robinson, Dsc, Pe
Trustee
Christi Kolarick, Ph.D.
Trustee
Connie Houston
Trustee
Don Casey
Trustee
Ellyn C Phillips
Secretary
Fred Degrandis
Trustee
John P Krave
Trustee
Judy Pratt, Dmd
Trustee
Lawrence R Barnett, Esq
Trustee
Lou Libby, M.D.
Trustee
Mark Calmes
Trustee

Contractors

Nne Marketing LLC
Direct Marketing
$290,500
Lucie Bruijn
Scientific Officer Research Oversight
$290,000
Mcdermott Will & Emery LLP
Attorney
$165,920
Faegre Baker Daniels LLP
Consultant Cdc Grant and Public Policy Ser
$131,462
Burke Williams Sorensen LLP
Attorney
$127,405

Mission Statement

THE MISSION OF THE ALS ASSOCIATION IS TO MAKE ALS LIVABLE AND CURE IT.

Other organizations also named Amyotrophic Lateral Sclerosis Association

Amyotrophic Lateral Sclerosis Association
Tampa, Florida
Amyotrophic Lateral Sclerosis Association Massachusetts Chapter Inc.
Westborough, Massachusetts
Amyotrophic Lateral Sclerosis Association Tennessee Chapter
Brentwood, Tennessee
Amyotrophic Lateral Sclerosis Associationiowa Chapter
West Des Moines, Iowa
Amyotrophic Lateral Sclerosis Association Greater Sacramento Chapter
Citrus Heights, California
The Amyotrophic Lateral Sclerosis Association West Michigan Chapter
Troy, Michigan

Revisions to this organization profile

December 11, 2025:
2025 Amyotrophic Lateral Sclerosis Association 990 filed
December 13, 2023:
2023 Amyotrophic Lateral Sclerosis Association 990 filed
August 1, 2022:
2022 Amyotrophic Lateral Sclerosis Association 990 filed

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