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Organizations Diseases, Disorders & Medical Amyotrophic Lateral Sclerosis Association

Amyotrophic Lateral Sclerosis Association

Fiscal year ending 2019. Filed on June 11, 2019.

1275 K Street NW No 250
Beverly Blvd 6500 Wil 11504720-5940
Washington, District of Columbia 20005

Amyotrophic Lateral Sclerosis Association (EIN: 13-3271855), also known as The ALS Association, has filed an IRS Form 990 between fiscal years 2017 and 2025. In its fiscal year 2019 IRS Form 990 filing, Amyotrophic Lateral Sclerosis Association, a 501(c)(3) charitable organization, reported compensation for 12 out of 106 total employees. Among the employees shown here, the average compensation is $191,647. The highest compensated employee at Amyotrophic Lateral Sclerosis Association is Calaneet Balas with fiscal year 2019 compensation of $312,711.

Revenue, expenses, and employee compensation

Revenue

$27,065,702

Expenses

$34,890,213

Employee compensation

$8,434,709
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Calaneet Balas
President and Chief Executive Officer
$312,711
$300,317 No related comp$12,394
Greg Mitchell
Executive Vice President, Finance and Administration
$242,891
$231,748 No related comp$11,143
Lance Slaughter
Executive Vice President, Chapter Relations and Governance
$224,512
$210,684 No related comp$13,828
Brian Frederick
Executive Vice President, Communication
$205,203
$195,041 No related comp$10,162
Kimberly Harding-Maginnis
Senior Vice President, CARE Services
$200,034
$188,046 No related comp$11,988
Tina Zeff
Executive Vice President, Development
$187,629
$167,968 No related comp$19,661
Kathleen Sheehan
Vice President, Public Policy and Advocacy
$178,060
$163,398 No related comp$14,662
Teressa Harris
Vice President, Finance
$164,766
$147,838 No related comp$16,928
Lyles Eddins
Vice President, Development
$149,169
$143,772 No related comp$5,397
Monica santa Cruz
Vice President, Human Resources and Talent Management
$148,986
$143,503 No related comp$5,483
Mary Bruney
Vice President, Chapter Relations - Until 08/18
$148,207
$140,348 No related comp$7,859
Neil Thakur
Executive Vice President, Mission Strategy
$137,597
$124,461 No related comp$13,136

Benchmark Employee Compensation

Non-Employee Board Members

Cameron Ward
Secretary
Charlie Robinson D Sc, Pe
Trustee
Christi L Kolarcik, Ph.D.
Trustee
Connie Houston
Trustee
Don Casey
Trustee
Doug Butcher
Trustee
Ellyn C Phillips
Trustee
Eugene Brandon, Ph.D.
Trustee
Fred M Degrandis
Trustee
John P Krave, Jd
Trustee
Judy Pratt, Dmd
Trustee
Lou Libby, M.D.
Trustee

Contractors

Nne Marketing
Direct Marketing
$366,000
Lucie Bruijn
Scientific Officer Research Oversite
$290,000
Drum U Marketing LLC
Marketing Consulting
$118,750
Threespot Media
Marketing Consulting
$113,600

Mission Statement

THE MISSION OF THE ALS ASSOCIATION IS TO MAKE ALS LIVABLE AND CURE IT.

Revisions to this organization profile

December 11, 2025:
2025 Amyotrophic Lateral Sclerosis Association 990 filed
December 13, 2023:
2023 Amyotrophic Lateral Sclerosis Association 990 filed
August 1, 2022:
2022 Amyotrophic Lateral Sclerosis Association 990 filed

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Amyotrophic Lateral Sclerosis Association
Tampa, Florida
Amyotrophic Lateral Sclerosis Association Massachusetts Chapter Inc.
Westborough, Massachusetts
Amyotrophic Lateral Sclerosis Association Tennessee Chapter
Brentwood, Tennessee
Amyotrophic Lateral Sclerosis Associationiowa Chapter
West Des Moines, Iowa
Amyotrophic Lateral Sclerosis Association Greater Sacramento Chapter
Citrus Heights, California
The Amyotrophic Lateral Sclerosis Association West Michigan Chapter
Troy, Michigan