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Organizations Diseases, Disorders & Medical Amyotrophic Lateral Sclerosis Association

Amyotrophic Lateral Sclerosis Association

Fiscal year ending 2020. Filed on June 19, 2020.

1300 Wilson Blvd No 600
Attn Dr Sandeep Rana 30 Isabella St
Arlington, Virginia 22209

Amyotrophic Lateral Sclerosis Association (EIN: 13-3271855), also known as The ALS Association, has filed an IRS Form 990 between fiscal years 2017 and 2025. In its fiscal year 2020 IRS Form 990 filing, Amyotrophic Lateral Sclerosis Association, a 501(c)(3) charitable organization, reported compensation for 12 out of 113 total employees. Among the employees shown here, the average compensation is $232,478. The highest compensated employee at Amyotrophic Lateral Sclerosis Association is Calaneet Balas with fiscal year 2020 compensation of $407,695.

Revenue, expenses, and employee compensation

Revenue

$37,031,804

Expenses

$41,808,503

Employee compensation

$10,678,002
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Calaneet Balas
President and Chief Executive Officer
$407,695
$358,632 No related comp$49,063
Greg Mitchell
Executive Vice President, Finance and Administration
$292,754
$257,561 No related comp$35,193
Lance Slaughter
Executive Vice President, Chapter Relations and Governance
$276,338
$239,507 No related comp$36,831
Neil Thakur
Executive Vice President, Mission Strategy
$268,879
$229,145 No related comp$39,734
Tina Zeff
Executive Vice President, Development
$250,739
$209,419 No related comp$41,320
Brian Frederick
Executive Vice President, Communication
$244,986
$226,534 No related comp$18,452
Kimberly Harding-Maginnis
Senior Vice President, CARE Services
$209,559
$194,734 No related comp$14,825
Kathleen Sheehan
Vice President, Public Policy and Advocacy
$185,167
$167,838 No related comp$17,329
Teressa Harris
Vice President, Finance
$170,091
$152,058 No related comp$18,033
Mary Morgan Roth
Vice President, Communications
$169,492
$156,688 No related comp$12,804
Lyles Eddins
Vice President, Development
$161,535
$156,784 No related comp$4,751
Monica santa Cruz
Vice President, Human Resources and Talent Management
$152,502
$148,273 No related comp$4,229

Benchmark Employee Compensation

Non-Employee Board Members

Cameron Ward
Secretary
Charlie Robinson D Sc, Pe
Trustee
Christi L Kolarcik, Ph.D.
Trustee
Clifton Gooch, M.D.
Trustee
Connie Houston
Trustee
Don Casey
Trustee
Doug Butcher
Trustee
Eugene Brandon, Ph.D.
Trustee
Fred M Degrandis
Trustee
J Thomas May
Trustee
John P Krave, Jd
Trustee
Judy Pratt, Dmd
Trustee

Contractors

Salesforce
Crm Software Implementation
$1,559,095
Drum U Marketing LLC
Marketing Consulting
$890,893
Attain LLC
Crm Software Implementation
$590,980
Turnkey Promotions
Marketing Consulting
$568,000

Mission Statement

THE MISSION OF THE ALS ASSOCIATION IS TO MAKE ALS LIVABLE AND CURE IT.

Revisions to this organization profile

December 11, 2025:
2025 Amyotrophic Lateral Sclerosis Association 990 filed
December 13, 2023:
2023 Amyotrophic Lateral Sclerosis Association 990 filed
August 1, 2022:
2022 Amyotrophic Lateral Sclerosis Association 990 filed

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Amyotrophic Lateral Sclerosis Association
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Amyotrophic Lateral Sclerosis Association Massachusetts Chapter Inc.
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Amyotrophic Lateral Sclerosis Association Tennessee Chapter
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Amyotrophic Lateral Sclerosis Associationiowa Chapter
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Amyotrophic Lateral Sclerosis Association Greater Sacramento Chapter
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The Amyotrophic Lateral Sclerosis Association West Michigan Chapter
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