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Organizations Diseases, Disorders & Medical Amyotrophic Lateral Sclerosis Association

Amyotrophic Lateral Sclerosis Association

Fiscal year ending 2022. Filed on August 1, 2022.

1300 Wilson Blvd 600
North
Arlington, Virginia 22209

Amyotrophic Lateral Sclerosis Association (EIN: 13-3271855), also known as The ALS Association, has filed an IRS Form 990 between fiscal years 2017 and 2025. In its fiscal year 2022 IRS Form 990 filing, Amyotrophic Lateral Sclerosis Association, a 501(c)(3) charitable organization, reported compensation for 11 out of 151 total employees. Among the employees shown here, the average compensation is $282,728. The highest compensated employee at Amyotrophic Lateral Sclerosis Association is Calaneet Balas with fiscal year 2022 compensation of $447,563.

Revenue, expenses, and employee compensation

Revenue

$39,792,803

Expenses

$44,852,298

Employee compensation

$13,877,954
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Calaneet Balas
President and Chief Executive Officer
$447,563
$351,501 No related comp$96,062
Tina Zeff
Chief Operating Officer
$334,301
$242,773 No related comp$91,528
Neil Thakur
Chief Mission Officer
$322,855
$245,753 No related comp$77,102
Greg Mitchell
Chief Financial Officer
$313,801
$261,808 No related comp$51,993
Lance Slaughter
Senior Vice President, Strategic Alliances and Governance
$275,791
$236,295 No related comp$39,496
Kuldip Dave
Vice President, Research
$266,272
$215,346 No related comp$50,926
Brian Frederick
Senior Vice President, and HEAD of Creative
$243,688
$226,668 No related comp$17,020
Kimberly Harding-Maginnis
Senior Vice President, CARE Services
$241,462
$213,473 No related comp$27,989
Teressa Harris
Senior Vice President, Finance
$233,445
$194,974 No related comp$38,471
Monica santa Cruz
Chief People Officer
$233,208
$214,647 No related comp$18,561
Dean Feener
Chief Information Officer
$197,623
$182,049 No related comp$15,574

Benchmark Employee Compensation

Non-Employee Board Members

Charlie Robinson D Sc, Pe
Trustee
Christi L Kolarcik, Ph.D.
Trustee
Clifton Gooch, M.D.
Trustee
Connie Houston
Treasurer
David van de Riet
Trustee
Eugene Brandon, Ph.D.
Trustee
Fred M Degrandis
Vice Chair
J Thomas May
Trustee
Jinsy Andrews
Trustee
John P Krave, Jd
Trustee
John Robinson
Trustee
Judy Pratt, Dmd
Trustee

Contractors

Salesforce
Crm Software Vendor
$887,657
Attain LLC
Crm Software Implementation
$862,834
Turnkey Promotions
Marketing Consulting
$848,590
Mcdermott Will and Emery LLP
Attorney
$619,553
Beyond Definition
Communication Consulting
$375,461

Mission Statement

THE MISSION OF THE ALS ASSOCIATION IS TO MAKE ALS LIVABLE AND CURE IT.

Revisions to this organization profile

December 11, 2025:
2025 Amyotrophic Lateral Sclerosis Association 990 filed
December 13, 2023:
2023 Amyotrophic Lateral Sclerosis Association 990 filed
August 1, 2022:
2022 Amyotrophic Lateral Sclerosis Association 990 filed

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Amyotrophic Lateral Sclerosis Association
Tampa, Florida
Amyotrophic Lateral Sclerosis Association Massachusetts Chapter Inc.
Westborough, Massachusetts
Amyotrophic Lateral Sclerosis Association Tennessee Chapter
Brentwood, Tennessee
Amyotrophic Lateral Sclerosis Associationiowa Chapter
West Des Moines, Iowa
Amyotrophic Lateral Sclerosis Association Greater Sacramento Chapter
Citrus Heights, California
The Amyotrophic Lateral Sclerosis Association West Michigan Chapter
Troy, Michigan