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Organizations Diseases, Disorders & Medical Amyotrophic Lateral Sclerosis Association

Amyotrophic Lateral Sclerosis Association

Fiscal year ending 2023. Filed on December 13, 2023.

1300 Wilson Blvd 600
Neurology
Arlington, Virginia 22209

Amyotrophic Lateral Sclerosis Association (EIN: 13-3271855), also known as The ALS Association, has filed an IRS Form 990 between fiscal years 2017 and 2025. In its fiscal year 2023 IRS Form 990 filing, Amyotrophic Lateral Sclerosis Association, a 501(c)(3) charitable organization, reported compensation for 11 out of 547 total employees. Among the employees shown here, the average compensation is $297,924. The highest compensated employee at Amyotrophic Lateral Sclerosis Association is Calaneet Balas with fiscal year 2023 compensation of $497,765.

Revenue, expenses, and employee compensation

Revenue

$55,567,608

Expenses

$84,199,819

Employee compensation

$36,210,639
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Calaneet Balas
President and Chief Executive Officer
$497,765
$456,666 No related comp$41,099
Tina Zeff
Chief Operating Officer
$349,584
$308,028 No related comp$41,556
Greg Mitchell
Chief Financial Officer
$321,784
$306,968 No related comp$14,816
Neil Thakur
Chief Mission Officer
$320,611
$275,627 No related comp$44,984
Kuldip Dave
Senior Vice President Research
$272,314
$222,758 No related comp$49,556
Lance Slaughter
Senior Vice President Strategic Alliances and Governance
$264,274
$241,396 No related comp$22,878
Monica santa Cruz
Chief People Officer
$259,975
$247,360 No related comp$12,615
Dean Feener
Chief Information and Marketing Officer
$259,816
$247,460 No related comp$12,356
Keith Gary
Vice President Mission Acceleration
$247,688
$214,098 No related comp$33,590
Vickie Lobello
Senior Vice President Organizational Change
$247,467
$228,324 No related comp$19,143
Brian Frederick
Senior Vice President Strategic Communications
$235,888
$224,926 No related comp$10,962

Benchmark Employee Compensation

Non-Employee Board Members

Amy Brachio
Trustee
Charlie Robinson D Sc, Pe
Trustee
Christi L Kolarcik, Ph.D.
Trustee
Clifton Gooch, M.D.
Trustee (Thru 02/22)
Connie Houston
Treasurer
David van de Riet
Trustee
Eugene Brandon, Ph.D.
Trustee
Fred M Degrandis
Vice Chair
J Thomas May
Trustee
Jinsy Andrews
Trustee
John P Krave, Jd
Trustee
John Robinson
Trustee (Thru 02/22)

Contractors

Mcdermott Will & Emery
Attorney (Legal Services)
$868,347
Barnes & Thornburg LLP
Attorney (Legal Services)
$792,577
Mccormick Group
Consulting
$404,394
Throughco Communications
Marketing and Communications
$275,637
Faegre Drinker Biddle & Reath LLP
Professional for Legislative Pu
$161,241

Mission Statement

THE MISSION OF THE ALS ASSOCIATION IS TO MAKE ALS LIVABLE AND CURE IT.

Revisions to this organization profile

December 11, 2025:
2025 Amyotrophic Lateral Sclerosis Association 990 filed
December 13, 2023:
2023 Amyotrophic Lateral Sclerosis Association 990 filed
August 1, 2022:
2022 Amyotrophic Lateral Sclerosis Association 990 filed

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Amyotrophic Lateral Sclerosis Association
Tampa, Florida
Amyotrophic Lateral Sclerosis Association Massachusetts Chapter Inc.
Westborough, Massachusetts
Amyotrophic Lateral Sclerosis Association Tennessee Chapter
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Amyotrophic Lateral Sclerosis Associationiowa Chapter
West Des Moines, Iowa
Amyotrophic Lateral Sclerosis Association Greater Sacramento Chapter
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The Amyotrophic Lateral Sclerosis Association West Michigan Chapter
Troy, Michigan