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Organizations Diseases, Disorders & Medical Amyotrophic Lateral Sclerosis Association

Amyotrophic Lateral Sclerosis Association

Fiscal year ending 2025. Filed on December 11, 2025.

1300 Wilson Blvd 600
Trailer
Arlington, Virginia 22209

Amyotrophic Lateral Sclerosis Association (EIN: 13-3271855), also known as The ALS Association, has filed an IRS Form 990 between fiscal years 2017 and 2025. In its fiscal year 2025 IRS Form 990 filing, Amyotrophic Lateral Sclerosis Association, a 501(c)(3) charitable organization, reported compensation for 13 out of 528 total employees. Among the employees shown here, the average compensation is $300,921. The highest compensated employee at Amyotrophic Lateral Sclerosis Association is Calaneet Balas with fiscal year 2025 compensation of $546,268.

Revenue, expenses, and employee compensation

Revenue

$68,583,051

Expenses

$82,239,637

Employee compensation

$43,300,438
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Calaneet Balas
President and Chief Executive Officer
$546,268
$491,499 No related comp$54,769
Patrick Reedy
Chief Development Officer
$351,930
$270,892 No related comp$81,038
Greg Mitchell
Chief Financial Officer
$324,003
$288,086 No related comp$35,917
Kuldip Dave
Senior Vice President Research
$308,061
$232,488 No related comp$75,573
Lance Slaughter
Senior Vice President Strategic Alliances and Governance
$292,560
$245,671 No related comp$46,889
Dean Feener
Chief Information and Technology Officer
$290,954
$264,616 No related comp$26,338
Jennifer Hjelle
Chief Community Engagement Officer
$275,769
$244,313 No related comp$31,456
Brian Frederick
Chief Marketing and Communications Officer
$265,670
$250,253 No related comp$15,417
Keith Gary
Vice President Mission Acceleration
$264,984
$219,020 No related comp$45,964
Vickie Lobello
Senior Vice President Organizational Change
$256,438
$237,001 No related comp$19,437
Kimberly Harding-Maginnis
Senior Vice President CARE Services
$254,092
$221,492 No related comp$32,600
Nicole Eck
Chief Strategy Officer
$249,217
$231,124 No related comp$18,093

Benchmark Employee Compensation

Non-Employee Board Members

Annette Bowman
Trustee
Bernie Zipprich
Trustee
Chris Tonniges
Trustee
Christi L Kolarcik, Ph.D.
Trustee (Thru 07/24)
Connie Houston
Trustee
Danielle Boisvert
Trustee
David van de Riet
Trustee
Dough Butcher
Trustee
Eugene Brandon, Ph.D.
Trustee
Eve Dryer
Trustee
Fred M Degrandis
Trustee
Fred M Degrandis
VICE Chair (Thru 07/24)/Trustee

Contractors

A New Direction Inc.
Supportive Care
$684,166
Barnes & Thornburg LLP
Attorney (Legal Services)
$368,718
YES& Holdings LLC
Professional IT
$210,300
Beacon Hill Solutions Group LLC
Temporary Help
$202,964
Faegre Drinker Biddle & Reath LLP
Lobbying Consulting
$195,300

Mission Statement

THE MISSION OF THE ALS ASSOCIATION IS TO MAKE ALS LIVABLE AND CURE IT.

Revisions to this organization profile

December 11, 2025:
2025 Amyotrophic Lateral Sclerosis Association 990 filed
December 13, 2023:
2023 Amyotrophic Lateral Sclerosis Association 990 filed
August 1, 2022:
2022 Amyotrophic Lateral Sclerosis Association 990 filed

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Amyotrophic Lateral Sclerosis Association
Tampa, Florida
Amyotrophic Lateral Sclerosis Association Massachusetts Chapter Inc.
Westborough, Massachusetts
Amyotrophic Lateral Sclerosis Association Tennessee Chapter
Brentwood, Tennessee
Amyotrophic Lateral Sclerosis Associationiowa Chapter
West Des Moines, Iowa
Amyotrophic Lateral Sclerosis Association Greater Sacramento Chapter
Citrus Heights, California
The Amyotrophic Lateral Sclerosis Association West Michigan Chapter
Troy, Michigan