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Organizations Diseases, Disorders & Medical Batten Disease Support & Research Association

Batten Disease Support & Research Association

Fiscal year ending 2024. Filed on October 22, 2025.

PO Box 30049
Floor 15
Gahanna, Ohio 43230

Batten Disease Support & Research Association (EIN: 91-1397792) has filed an IRS Form 990 between fiscal years 2016 and 2024. In its fiscal year 2024 IRS Form 990 filing, Batten Disease Support & Research Association, a 501(c)(3) charitable organization, reported compensation for 1 out of 5 total employees. Among the employees shown here, the average compensation is $100,000. The highest compensated employee at Batten Disease Support & Research Association is Amy Fenton Parker with fiscal year 2024 compensation of $100,000.

Revenue, expenses, and employee compensation

Revenue

$601,964

Expenses

$967,326

Employee compensation

$369,612
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Amy Fenton Parker
President
$100,000
$100,000 No related compNo other comp

Benchmark Employee Compensation

Non-Employee Board Members

Anthony Ferrandino
Director
Barbara McDonough
Secretary
Barbara Wuebbels
Board Vice Chair
Darlene Royalty
Board Chair
Dave Pearce
Director
Donna Fogel
Director
Fernanda Leal-Pardinas
Director
Fred Surrey
Treasurer
John Ireland
Director
John Patterson
Director
Kate Haller
Director
Suzette James
Director

Mission Statement

OUR LONG-TERM VISION IS A WORLD WITHOUT BATTEN DISEASE. OUR MISSION IS TO SUPPORT BATTEN FAMILIES, FUND AND FACILITATE RESEARCH AND ADVOCATE FOR TREATMENTS AND A CURE.

Revisions to this organization profile

October 22, 2025:
2024 Batten Disease Support & Research Association 990 filed
August 30, 2024:
2023 Batten Disease Support & Research Association 990 filed
November 15, 2023:
2022 Batten Disease Support & Research Association 990 filed

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