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Organizations Diseases, Disorders & Medical Batten Disease Support & Research Association

Batten Disease Support & Research Association

Fiscal year ending 2020. Filed on September 16, 2021.

2780 Airport Drive Suite 342
Box 9100
Columbus, Ohio 43219

Batten Disease Support & Research Association (EIN: 91-1397792) has filed an IRS Form 990 between fiscal years 2016 and 2024. In its fiscal year 2020 IRS Form 990 filing, Batten Disease Support & Research Association, a 501(c)(3) charitable organization, reported compensation for 1 out of 6 total employees. Among the employees shown here, the average compensation is $30,086. The highest compensated employee at Batten Disease Support & Research Association is Michelle Churchill with fiscal year 2020 compensation of $30,086.

Revenue, expenses, and employee compensation

Revenue

$1,228,607

Expenses

$718,019

Employee compensation

$285,804
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Michelle Churchill
Executive Director
$30,086
$30,086 No related compNo other comp

Benchmark Employee Compensation

Non-Employee Board Members

Barbara McDonough
Director
Barbara Wuebbels
Vice President
Bob Jensen
Treasurer
Brock Benroth
Director
Darlene Royalty
President
David Pearce
Director
Donna Fogle
Secretary
John Ireland
SIB Represen
Kate Haller
Director
Mike Collins
Director
Tony Ferrandino
Director
Trent Lewis
Director

Mission Statement

OUR LONG-TERM VISION IS A WORLD WITHOUT BATTEN DISEASE. OUR MISSION IS TO SUPPORT BATTEN FAMILIES, FUND AND FACILITATE RESEARCH AND ADVOCATE FOR TREATMENTS AND A CURE.

Revisions to this organization profile

October 22, 2025:
2024 Batten Disease Support & Research Association 990 filed
August 30, 2024:
2023 Batten Disease Support & Research Association 990 filed
November 15, 2023:
2022 Batten Disease Support & Research Association 990 filed

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