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Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

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Organizations Education Beyond Batten Disease Foundation

Beyond Batten Disease Foundation

Fiscal year ending 2016. Filed on February 11, 2017.

PO Box 50221
Austin, Texas 78763

Beyond Batten Disease Foundation (EIN: 26-3223661) has filed an IRS Form 990 between fiscal years 2016 and 2024. In its fiscal year 2016 IRS Form 990 filing, Beyond Batten Disease Foundation, a 501(c)(3) charitable organization, reported compensation for 3 out of 4 total employees. Among the employees shown here, the average compensation is $131,579. The highest compensated employee at Beyond Batten Disease Foundation is Mary Beth Kiser with fiscal year 2016 compensation of $131,657.

Revenue, expenses, and employee compensation

Revenue

$2,142,709

Expenses

$1,447,007

Employee compensation

$418,973
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Mary Beth Kiser
President and Chief Executive Officer
$131,657
$131,657 No related compNo other comp
Danielle Kerkovich
Scientific Officer
$131,500
$131,500 No related compNo other comp
Patrick S McClain
Vice President, Secr, Treasurer
$0

Benchmark Employee Compensation

Non-Employee Board Members

Caroline Goodner
Director
Dr Kyle L Janek
Director
Dr Mark Chandler
Director
Jeff Hunt
Director
Sabrina Brown
Director
Scott Young
Director
T Craig Benson
Director
William Murphy
Director

Mission Statement

TO ERADICATE JUVENILE BATTEN DISEASE BY RAISING AWARENESS AND FUNDS FOR RESEARCH TO FIND A TREATMENT OR CURE.

Revisions to this organization profile

May 13, 2025:
2024 Beyond Batten Disease Foundation 990 filed
May 14, 2024:
2023 Beyond Batten Disease Foundation 990 filed
May 15, 2023:
2022 Beyond Batten Disease Foundation 990 filed

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