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Organizations Education Cardio-Facio-Cutaneous International

Cardio-Facio-Cutaneous International

Fiscal year ending 2024. Filed on November 17, 2025.

5 Wexford Court
St James, New York 11780

Cardio-Facio-Cutaneous International (EIN: 16-1569293) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2024 IRS Form 990 filing, Cardio-Facio-Cutaneous International, a 501(c)(3) charitable organization, reported compensation for 1 out of 4 total employees. Among the employees shown here, the average compensation is $70,833. The highest compensated employee at Cardio-Facio-Cutaneous International is Troy Greisen with fiscal year 2024 compensation of $70,833.

Revenue, expenses, and employee compensation

Revenue

$207,106

Expenses

$401,040

Employee compensation

$171,876
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Troy Greisen
Former Executive Director
$70,833
$70,833 No related compNo other comp

Benchmark Employee Compensation

Non-Employee Board Members

Tuesdi Dyer
Executive Director
$19,624
$19,624 No related compNo other comp
Vidya Ramabadran
Board Member
No compensation reported
Pilar Magoulas
Vice President
No compensation reported
Glenda Hux
Secretary
No compensation reported
Jeff Kohler
Former President
No compensation reported
Alexis Nash
President
No compensation reported
Richard Boyce
Board Member
No compensation reported
Darin Iacobelli
Treasurer
No compensation reported

Mission Statement

CFC International's mission is to improve the quality of life for individuals with Cardiofaciocutaneous Syndrome and their families through support, research, awareness, and education. Our vision is to advance understanding and treatment of CFC syndrome. We achieve our mission and seek our vision by providing comprehensive educational materials, a robust website, condition management webinars, and disseminate vital information - like peer-reviewed treatment guidelines - to diagnosed patients and caregivers. We improve access to experts in the management of CFC syndrome by hosting a biennial medical conference as well as at least one Rasopathy Clinic care event per year. Our patient families convene for support in multiple ways: through a Facebook support group, six to eight virtual support groups per month, and regional family meetups. Through our Medical Advisory Board, we strive to ensure that healthcare professionals have immediate access to the most current information, facilitatin

Revisions to this organization profile

November 17, 2025:
2024 Cardio-Facio-Cutaneous International 990 filed
November 14, 2024:
2023 Cardio-Facio-Cutaneous International 990 filed
November 10, 2023:
2022 Cardio-Facio-Cutaneous International 990 filed

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