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Organizations Diseases, Disorders & Medical Charcot-Marie-Tooth Association

Charcot-Marie-Tooth Association

Fiscal year ending 2023. Filed on July 30, 2024.

8 S Garfield Ave
Glenolden, Pennsylvania 19036

Charcot-Marie-Tooth Association (EIN: 22-2480896) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2023 IRS Form 990 filing, Charcot-Marie-Tooth Association, a 501(c)(3) charitable organization, reported compensation for 6 out of 11 total employees. Among the employees shown here, the average compensation is $125,030. The highest compensated employee at Charcot-Marie-Tooth Association is Jeana Sweeney with fiscal year 2023 compensation of $219,762.

Revenue, expenses, and employee compensation

Revenue

$5,761,508

Expenses

$6,291,966

Employee compensation

$1,117,162
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Jeana Sweeney
Chief Engagement and GIFT Officer
$219,762
$212,500 No related comp$7,262
Amy Gray
Chief Executive Officer (TIL 03/2023)
$151,384
$149,038 No related comp$2,346
Katherine Forsey
Chief Research Officer
$120,794
$113,555 No related comp$7,239
Laurel Richardson
Community Outreach Director
$106,149
$102,375 No related comp$3,774
Kimberly Magee
Finance and Administration Director
$103,034
$99,375 No related comp$3,659
Suzanne Bruhn
Chief Executive Officer (From 11/2023)
$49,056
$47,307 No related comp$1,749

Benchmark Employee Compensation

Non-Employee Board Members

Alan Korowitz
Director
Chris Ouellette
Director (Until AUG 2023)
Craig Zeltsar
Director
Dan Chamby
Director
David Apple
Director (From APR 2023)
David Coldiron
Director
David Norcom
Director
Dr John Svaren
Director
Dr Michael Shy
Director
Dr Steven Scherer
Director
Dr Thomas Dubensky
Director
Gary Gasper
Director

Contractors

Humanfirst Therapeutics
Research Consultant
$415,648

Mission Statement

CMTA AWARDS RESEARCH FELLOWSHIPS AND GRANTS FOR RESEARCH ON CHARCOT-MARIE-TOOTH DIESEASE. CMTA ALSO HOSTS BI-ANNUAL MEETINGS OF ALL RESEARCHERS RECEIVING ITS FUNDING TO PROMOTE KNOWLEDGE EXCHANGE AND SYNERGY. IT USES THE SERVICES OF A MEDICAL RESEARCH CONSULTANT TO OVERSEE THE SELECTION OF THE RECEIPIENTS OF THE RESEARCH FUNDING AND TP WRITE THE GRANTS AND CONTRACTS WITH THESE RESEARCHERS.

Revisions to this organization profile

August 5, 2025:
2024 Charcot-Marie-Tooth Association 990 filed
July 30, 2024:
2023 Charcot-Marie-Tooth Association 990 filed
August 22, 2023:
2022 Charcot-Marie-Tooth Association 990 filed

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