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Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

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Organizations Diseases, Disorders & Medical Charcot-Marie-Tooth Association

Charcot-Marie-Tooth Association

Fiscal year ending 2024. Filed on August 5, 2025.

PO Box 105
Glenolden, Pennsylvania 19036

Charcot-Marie-Tooth Association (EIN: 22-2480896) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2024 IRS Form 990 filing, Charcot-Marie-Tooth Association, a 501(c)(3) charitable organization, reported compensation for 5 out of 13 total employees. Among the employees shown here, the average compensation is $159,161. The highest compensated employee at Charcot-Marie-Tooth Association is Suzanne Bruhn with fiscal year 2024 compensation of $311,016.

Revenue, expenses, and employee compensation

Revenue

$5,778,743

Expenses

$5,791,669

Employee compensation

$1,351,608
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Suzanne Bruhn
Chief Executive Officer
$311,016
$300,000 No related comp$11,016
Jeana Sweeney
Chief Engagement and GIFT Officer
$145,515
$140,000 No related comp$5,515
Katherine Forsey
Chief Research Officer
$131,956
$125,404 No related comp$6,552
Laurel Richardson
Community Outreach Director
$105,244
$101,520 No related comp$3,724
Kimberly Magee
Direcot of Finance and Admin
$102,076
$98,400 No related comp$3,676

Benchmark Employee Compensation

Non-Employee Board Members

Alan Korowitz
Board Member (Thru 2/24)
Bernard Coulie
Board Member (EFF 2/24)
Craig Zeltsar
Board Member
Dan Chamby
Board Member
David Apple
Board Member
David Coldiron
Board Member
David Norcom
Board Member (Thru 9/24)
Dr Michael Shy
Board Member
Dr Steven Scherer
Board Member
Dr Thomas Dubensky
Board Member
Gary J Gasper
Board Member
Gilles Bouchard
Chair

Mission Statement

CMTA AWARDS RESEARCH FELLOWSHIPS AND GRANTS FOR RESEARCH ON CHARCOT-MARIE-TOOTH DIESEASE. CMTA ALSO HOSTS BI-ANNUAL MEETINGS OF ALL RESEARCHERS RECEIVING ITS FUNDING TO PROMOTE KNOWLEDGE EXCHANGE AND SYNERGY. IT USES THE SERVICES OF A MEDICAL RESEARCH CONSULTANT TO OVERSEE THE SELECTION OF THE RECEIPIENTS OF THE RESEARCH FUNDING AND TP WRITE THE GRANTS AND CONTRACTS WITH THESE RESEARCHERS.

Revisions to this organization profile

August 5, 2025:
2024 Charcot-Marie-Tooth Association 990 filed
July 30, 2024:
2023 Charcot-Marie-Tooth Association 990 filed
August 22, 2023:
2022 Charcot-Marie-Tooth Association 990 filed

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