Fiscal year ending 2024. Filed on September 25, 2025.
PO Box 135
Glen Ridge, New Jersey 07028
Congenital Hyperinsulinism International (EIN: 20-3068945) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2024 IRS Form 990 filing, Congenital Hyperinsulinism International, a 501(c)(3) charitable organization, reported compensation for 3 out of 9 total employees. Among the employees shown here, the average compensation is $99,690. The highest compensated employee at Congenital Hyperinsulinism International is Julie Raskin with fiscal year 2024 compensation of $114,071.
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Congenital Hyperinsulinism International (CHI) is a nonprofit 501(c)(3) corporation dedicated to improving the lives of babies, children, and adults affected by congenital hyperinsulinism (HI). HI is a life-threatening genetic disorder that causes severe low blood sugar (hypoglycemia) in infants and children, though in 50% of patients, the genetic cause is unknown. For those with HI, the beta cells of the pancreas secrete too much insulin in an unregulated manner. Excess insulin causes hypoglycemia. Prolonged or severe hypoglycemia can cause seizures, permanent brain damage, or even death if left untreated. A good prognosis is far more likely with a timely diagnosis and proper management.
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