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Organizations Cornelia DE Lange Syndrome Foundation

Cornelia DE Lange Syndrome Foundation

Fiscal year ending 2016. Filed on November 2, 2017.

302 West Main Street
Avon, Connecticut 06001

Cornelia DE Lange Syndrome Foundation (EIN: 06-1057497) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2016 IRS Form 990 filing, Cornelia DE Lange Syndrome Foundation, a 501(c)(3) charitable organization, reported compensation for 2 out of 10 total employees. Among the employees shown here, the average compensation is $57,859. The highest compensated employee at Cornelia DE Lange Syndrome Foundation is Kelly Brown with fiscal year 2016 compensation of $83,843.

Revenue, expenses, and employee compensation

Revenue

$929,428

Expenses

$1,030,548

Employee compensation

$498,857
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Kelly Brown
Acting Ex. Director
$83,843
$83,843 No related compNo other comp
Susan Pribyson
Executive Director
$31,875
$31,875 No related compNo other comp

Benchmark Employee Compensation

Non-Employee Board Members

Antonie Kline, M.D.
Medical Director
Beth Smisloff
Director
Carlos Madrid, Esq
Director
Catherine Caron
Director
David Barnes
Vice President
Dennis Drislane
Director
Dianne Lessa
Director
Eric Johnson
Treasurer
Fran Rissland
Director
Jim Kesting
Director
Julia O'Connor, Ph.D.
Director
Katherina Nikzad-Terhune
Director

Mission Statement

A family support organization that exists to ensure early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lives.

Revisions to this organization profile

October 10, 2025:
2024 Cornelia DE Lange Syndrome Foundation 990 filed
September 23, 2024:
Amended (originally filed November 15, 2023)2022 Cornelia DE Lange Syndrome Foundation 990 filed
August 30, 2024:
2023 Cornelia DE Lange Syndrome Foundation 990 filed

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