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Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

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Organizations Medical Research Cure Duchenne

Cure Duchenne

Fiscal year ending 2021. Filed on November 15, 2022.

24000 Alicia Parkway Ste 466
Mission Viejo, California 92691

Cure Duchenne (EIN: 20-0299958) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2021 IRS Form 990 filing, Cure Duchenne, a 501(c)(3) charitable organization, reported compensation for 5 out of 30 total employees. Among the employees shown here, the average compensation is $165,402. The highest compensated employee at Cure Duchenne is Lianna Orlando with fiscal year 2021 compensation of $180,875.

Revenue, expenses, and employee compensation

Revenue

$5,442,219

Expenses

$7,605,386

Employee compensation

$2,939,257
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Lianna Orlando
Senior Director of Research
$180,875
$180,875 No related compNo other comp
Joann Kemp
Director of Clinical Programs
$175,875
$175,875 No related compNo other comp
Christian Nelson
Senior Director of Philanthropy
$165,000
$165,000 No related compNo other comp
Kathlene Balisy
Finance Director
$153,958
$153,958 No related compNo other comp
Debra Miller
President and Chief Executive Officer
$151,304
$151,304 No related compNo other comp

Benchmark Employee Compensation

Non-Employee Board Members

Dana White
Director
David MacInnis
Director
Elaine Wu
Director
Jeffrey Goffman
Director
Martin Lehr
Director
Paul Miller
Secretary
Peter Strelow
Director
Ryan Williams
Director
Sarah McElroy
Director
Tim Sullivan
Director
Tj Farnsworth
Director

Mission Statement

CURE DUCHENNE IS A NON-PROFIT ORGANIZATION DEDICATED TO RAISING FUNDS; COORDINATING AND FUNDING RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY, INCREASING PUBLIC AWARENESS FOR DUCHENNE MUSCULAR DYSTROPHY PATIENTS, IMPROVING CARE, HEALTH,AND QUAILITY OF LIVING FOR DUCHENNE MUSCULAR DYSTROPHY PATIENTS.

Revisions to this organization profile

August 27, 2025:
2024 Cure Duchenne 990 filed
October 11, 2024:
2023 Cure Duchenne 990 filed
November 15, 2023:
2022 Cure Duchenne 990 filed

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