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Organizations Medical Research Cure Sanfilippo Foundation

Cure Sanfilippo Foundation

Fiscal year ending 2024. Filed on November 11, 2025.

PO Box 6901
Columbia, South Carolina 29260

Cure Sanfilippo Foundation (EIN: 46-4322131) has filed an IRS Form 990 since fiscal year 2017. In its fiscal year 2024 IRS Form 990 filing, Cure Sanfilippo Foundation, a 501(c)(3) charitable organization, reported compensation for 3 out of 5 total employees. Among the employees shown here, the average compensation is $143,343. The highest compensated employee at Cure Sanfilippo Foundation is Glenn O'Neill with fiscal year 2024 compensation of $161,106.

Revenue, expenses, and employee compensation

Revenue

$2,781,149

Expenses

$1,572,959

Employee compensation

$630,558
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Glenn O'Neill
Exe Dir/Pres
$161,106
$139,049 No related comp$22,057
Cara O'Neill
Chief Science
$146,196
$124,759 No related comp$21,437
Katie Walton
Vice President
$122,727
$118,051 No related comp$4,676

Benchmark Employee Compensation

Non-Employee Board Members

Adam Shaywitz
Director
Ben von Wong
Director
Daniel Fraley
Board Chair
Faith McAngus
Director
Jessica Haywood
Director
Mike Lykes
Director
Shelby Leonardi
Secretary

Mission Statement

To accelerate scientific development and access to a cure or therapeutic options for all affected by Sanfilippo syndrome, drive advocacy to improve care and outcomes, and empower families with information, guidance, and support to navigate the journey.

Revisions to this organization profile

November 11, 2025:
2024 Cure Sanfilippo Foundation 990 filed
November 11, 2024:
2023 Cure Sanfilippo Foundation 990 filed
November 14, 2023:
2022 Cure Sanfilippo Foundation 990 filed

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