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Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

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Organizations Medical Research Cure Tay-Sachs Foundation

Cure Tay-Sachs Foundation

Fiscal year ending 2024. Filed on August 13, 2025.

2409 E Luke Ave
Phoenix, Arizona 85016

Cure Tay-Sachs Foundation (EIN: 26-0256621) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2024 IRS Form 990 filing, Cure Tay-Sachs Foundation, a 501(c)(3) charitable organization, reported compensation for 2 employees. Among the employees shown here, the average compensation is $48,000. The highest compensated employee at Cure Tay-Sachs Foundation is Rick Karl with fiscal year 2024 compensation of $48,000.

Revenue, expenses, and employee compensation

Revenue

$141,059

Expenses

$251,226

Employee compensation

$48,000
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Rick Karl
President
$48,000
$48,000 No related compNo other comp
Bruce Steiger
Treasurer
$0

Benchmark Employee Compensation

Non-Employee Board Members

Brian Plick
Director
Brianne Anderson
Director
Cheryl Babo
Director
Deepa Kodali
Director
Holly McDonald
Director
Laurie Ten Berg
Director
Matt Lunchick
Director
Nicki Luce
Director
Robbie Sandoval
Director
Royce Stinger
Director
Terry Karl, Esq
Director

Mission Statement

THE CURE TAY-SACHS FOUNDATION HAS BEEN CREATED TO FUND THE RESEARCH INITIATIVES THAT SHOW PROMISE TO TREAT AND ULTIMATELY CURE TAY-SACHS DISEASE (TSD). TSD IS HEREDITARY DISEASE PASSED ON WHEN TWO CARRIER PARENTS BOTH PASS THE TAY-SACHS GENE TO THEIR CHILD. TAY-SACHS HAS THREE FORMS - THE CLASSIC OR INFANTILE FORM, THE JUVENILE ONSET FORM AND THE LATE ON-SET FORM KNOWN AS LOTS. CHILDREN INFECTED WITH THE INFANTILE OR JUVENILE FORM CURRENTLY HAVE A 100% MORTAILITY RATE - NO CHILD HAS EVER SURVIVED THIS DISEASE. WE AIM TO CHANGE THAT.

Revisions to this organization profile

August 13, 2025:
2024 Cure Tay-Sachs Foundation 990 filed
November 8, 2024:
2023 Cure Tay-Sachs Foundation 990 filed
November 15, 2023:
2022 Cure Tay-Sachs Foundation 990 filed

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