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Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

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Organizations Diseases, Disorders & Medical Cystic Fibrosis Foundation

Cystic Fibrosis Foundation

Fiscal year ending 2024. Filed on November 14, 2025.

4550 Montgomery Avenue 1100n
Suite 1900
Bethesda, Maryland 20814

Cystic Fibrosis Foundation (EIN: 13-1930701) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2024 IRS Form 990 filing, Cystic Fibrosis Foundation, a 501(c)(3) charitable organization, reported compensation for 13 out of 875 total employees. Among the employees shown here, the average compensation is $1,004,933. The highest compensated employee at Cystic Fibrosis Foundation is John C Mahler Jr, M.D. with fiscal year 2024 compensation of $1,942,627.

Revenue, expenses, and employee compensation

Revenue

$355,798,320

Expenses

$439,138,919

Employee compensation

$143,748,863
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

John C Mahler Jr, M.D.
Chief Investment Officer
$1,942,627
$1,866,868 No related comp$75,759
Earl A Lee
Managing Director, Investments
$1,594,752
$1,226,269 No related comp$368,483
Andrew Lewis
Managing Director, Investments
$1,401,714
$1,363,454 No related comp$38,260
Eric Koehrsen
Managing Director, Investments
$1,280,707
$976,105 No related comp$304,602
Michael P Boyle, M.D.
President and Chief Executive Officer
$1,275,151
$1,054,388 No related comp$220,763
Irena Barisic
Executive Vice President and Chief Operating and Financial Officer
$844,555
$761,939 No related comp$82,616
Gentiana S Arovas
Managing Director, Investments Operations
$819,659
$642,532 No related comp$177,127
John P Clancy, M.D.
Senior Vice President, Clinical Research
$765,204
$669,826 No related comp$95,378
Albert Faro, M.D.
Chief Medical Officer Beg. 7/1/2024
$671,590
$571,672 No related comp$99,918
Steven Rowe, M.D.
Executive Vice President, Chief Scientific Officer
$667,206
$534,655 No related comp$132,551
Michael B Cavadel
Senior Vice President, Chief Legal Officer
$661,197
$558,135 No related comp$103,062
Enrique Lin Shiao, Ph.D.
Principal of Mission Related Investments
$589,642
$507,691 No related comp$81,951

Benchmark Employee Compensation

Non-Employee Board Members

Carole B Griego, M.D.
Trustee
David A Mount
Treasurer
Dodzie Sogah, Ph.D.
Trustee
Dominic J Caruso
Trustee
Elise Eberwein
Trustee
Eric R Olson, Ph.D.
Vice Chair
Eric Schneider, M.D.
Trustee
Jessica H Boyd, M.D.
Trustee
John S Weinberg
Executive Vice Chair
Kate O'Donnell
Trustee
Kc Bryan White
Chair
Louis A Defalco
Vice Chair

Contractors

Vertex Pharmaceuticals Inc.
Contracted Research
$12,500,000
Prime Medicine Inc
Contracted Research
$6,000,000
Anagram Therapeutics Inc.
Contracted Research
$5,500,000
Pioneering Medicine (Cf)
Contracted Research
$5,211,571
Slalom LLC
Technology Consulting
$3,656,673

Mission Statement

TO CURE CF AND PROVIDE ALL PEOPLE WITH CF THE OPPORTUNITY TO LEAD LONG, FULFILLING LIVES BY FUNDING RESEARCH AND DRUG DEVELOPMENT, PARTNERING WITH THE CF COMMUNITY, AND ADVANCING HIGH-QUALITY, SPECIALIZED CARE.

Revisions to this organization profile

November 14, 2025:
2024 Cystic Fibrosis Foundation 990 filed
November 12, 2024:
2023 Cystic Fibrosis Foundation 990 filed
November 14, 2023:
2022 Cystic Fibrosis Foundation 990 filed

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Cystic Fibrosis Foundation Therapeutics Inc.
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