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Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

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Organizations Diseases, Disorders & Medical Cystic Fibrosis Foundation

Cystic Fibrosis Foundation

Fiscal year ending 2016. Filed on August 22, 2017.

4550 Montgomery Avenue Suite 1100 N
Suite 260
Bethesda, Maryland 20814

Cystic Fibrosis Foundation (EIN: 13-1930701) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2016 IRS Form 990 filing, Cystic Fibrosis Foundation, a 501(c)(3) charitable organization, reported compensation for 13 out of 731 total employees. Among the employees shown here, the average compensation is $509,373. The highest compensated employee at Cystic Fibrosis Foundation is Preston Campbell, M.D. with fiscal year 2016 compensation of $1,177,165.

Revenue, expenses, and employee compensation

Revenue

$192,528,975

Expenses

$299,650,531

Employee compensation

$58,875,323
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Preston Campbell, M.D.
President and Chief Executive Officer
$1,177,165
$616,640 $304,574 $255,951
John Mahler, M.D.
Chief Investment Officer
$940,732
$830,745 No related comp$109,987
Robert J Beall, Ph.D.
Former Ceo&Current Consultant
$644,712
$518,038 $126,109 $565
Vera H Twigg
Executive Vice President and Chief Financial Officer
$568,155
$465,131 No related comp$103,024
Bruce Marshall, M.D.
Senior Vice President, Clinical Affairs
$513,969
$386,312 $95,540 $32,117
Marc S Ginsky
Executive Vice President, COO and Secretary
$455,182
$305,540 No related comp$149,642
William Skach, M.D.
Senior Vice President, Research Affairs
$442,116
$58,192 $329,757 $54,167
Timothy A Waire Jr
Chief Information Officer
$370,477
$308,006 No related comp$62,471
Leah Bloom, Ph.D.
Chief of Strategy
$354,675
$305,677 No related comp$48,998
Marybeth McMahon, Ph.D.
Chief of Staff
$345,168
$294,073 No related comp$51,095
William Blanton
Investments Director
$337,882
$309,472 No related comp$28,410
Drucy S Borowitz, M.D.
Senior Vice President, Community Partnerships
$328,417
$320,867 No related comp$7,550

Benchmark Employee Compensation

Non-Employee Board Members

Amy S Weinberg
Trustee
Carole B Griego, M.D.
Trustee
Catherine C McLoud
Chair
Chad T Moore
Trustee
Charles J Thayer
Trustee
David A Mount
Treasurer
Eric Olson, Ph.D.
Trustee
Gary B Sabin
Trustee
Kc Bryan White
Trustee
Louis Defalco
Vice Chair
Paul W Whetsell
Executive Vice Chair
Richard J Gray, Esq
Vice Chair

Contractors

Gardner Russo Gardner LLC
Investment Management
$1,509,059
Celerity It LLC
Software Dev/Maintenance
$1,378,958
Sufian Passamano
Patient Assistance
$1,368,250
Bares Capital Management Inc.
Investment Management
$1,152,160
Mind Over Machines
Software Dev/Maintenance
$1,111,028

Mission Statement

TO CURE CF AND PROVIDE ALL PEOPLE WITH CF THE OPPORTUNITY TO LEAD LONG, FULFILLING LIVES BY FUNDING RESEARCH AND DRUG DEVELOPMENT, PARTNERING WITH THE CF COMMUNITY, AND ADVANCING HIGH-QUALITY, SPECIALIZED CARE.

Revisions to this organization profile

November 14, 2025:
2024 Cystic Fibrosis Foundation 990 filed
November 12, 2024:
2023 Cystic Fibrosis Foundation 990 filed
November 14, 2023:
2022 Cystic Fibrosis Foundation 990 filed

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The Christopher Ricardo Cystic Fibrosis Foundation Inc
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Cystic Fibrosis Foundation Therapeutics Inc.
Bethesda, Maryland