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Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

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Organizations Diseases, Disorders & Medical Cystic Fibrosis Foundation

Cystic Fibrosis Foundation

Fiscal year ending 2018. Filed on October 14, 2019.

4550 Montgomery Avenue Suite 1100n
Box 102
Bethesda, Maryland 20814

Cystic Fibrosis Foundation (EIN: 13-1930701) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2018 IRS Form 990 filing, Cystic Fibrosis Foundation, a 501(c)(3) charitable organization, reported compensation for 14 out of 846 total employees. Among the employees shown here, the average compensation is $633,275. The highest compensated employee at Cystic Fibrosis Foundation is Preston Campbell, M.D. with fiscal year 2018 compensation of $1,426,266.

Revenue, expenses, and employee compensation

Revenue

$275,790,756

Expenses

$337,912,568

Employee compensation

$90,187,520
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Preston Campbell, M.D.
President and Chief Executive Officer
$1,426,266
$1,263,852 No related comp$162,414
Jack Mahler, M.D.
Chief Investment Officer
$1,078,107
$924,937 No related comp$153,170
Marc S Ginsky
Executive Vice President, COO and Secretary
$920,111
$733,685 No related comp$186,426
Vera H Twigg
Executive Vice President and Chief Financial Officer
$799,313
$696,431 No related comp$102,882
Bruce Marshall, M.D.
Senior Vice President, Clinical Affairs
$634,938
$602,074 No related comp$32,864
Michael P Boyle, M.D.
Sr.Vp,Therapeutics Development
$611,716
$497,768 No related comp$113,948
William Skach, M.D.
Senior Vice President, Research Affairs
$604,970
$491,019 No related comp$113,951
Drucy S Borowitz, M.D.
Senior Vice President, Community Affairs
$535,298
$499,834 No related comp$35,464
Matthew McBrady
Managing Director, Investments
$533,026
$470,395 No related comp$62,631
Chris Gegelys
Senior Vice President, Chief Legal Officer
$445,641
$378,810 No related comp$66,831
Albert Faro, M.D.
Sr.Director Clinical Affairs
$421,957
$355,016 No related comp$66,941
Marybeth McMahon, Ph.D.
Chief of Staff
$418,331
$364,566 No related comp$53,765

Benchmark Employee Compensation

Non-Employee Board Members

Carole B Griego, M.D.
Trustee
Catherine C McLoud
Chair
Chad T Moore
Trustee
David A Mount
Treasurer
Eric R Olson, Ph.D.
Trustee
John S Weinberg
Trustee
Kc Bryan White
Trustee
Louis A Defalco
Vice Chair
Paul W Whetsell
Executive Vice Chair
Richard J Gray, Esq
Vice Chair
Richard L Dandurand
Trustee (Through 5/15/18)
Robert H Niehaus
Vice Chair

Contractors

Corbus Pharmaceuticals Inc.
Contracted Research
$12,515,000
Vertex Pharmaceuticals Inc.
Contracted Research
$7,500,000
Celtaxsys Inc.
Contracted Research
$3,896,667
Genzyme Corporation
Contracted Research
$2,943,660
Spyryx Biosciences Inc.
Contracted Research
$2,923,217

Mission Statement

TO CURE CF AND PROVIDE ALL PEOPLE WITH CF THE OPPORTUNITY TO LEAD LONG, FULFILLING LIVES BY FUNDING RESEARCH AND DRUG DEVELOPMENT, PARTNERING WITH THE CF COMMUNITY, AND ADVANCING HIGH-QUALITY, SPECIALIZED CARE.

Revisions to this organization profile

November 14, 2025:
2024 Cystic Fibrosis Foundation 990 filed
November 12, 2024:
2023 Cystic Fibrosis Foundation 990 filed
November 14, 2023:
2022 Cystic Fibrosis Foundation 990 filed

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The Christopher Ricardo Cystic Fibrosis Foundation Inc
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Cystic Fibrosis Foundation Therapeutics Inc.
Bethesda, Maryland