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Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

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Organizations Diseases, Disorders & Medical Cystic Fibrosis Foundation

Cystic Fibrosis Foundation

Fiscal year ending 2019. Filed on October 28, 2020.

4550 Montgomery Avenue Suite 1100n
PO Box 1012
Bethesda, Maryland 20814

Cystic Fibrosis Foundation (EIN: 13-1930701) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2019 IRS Form 990 filing, Cystic Fibrosis Foundation, a 501(c)(3) charitable organization, reported compensation for 13 out of 888 total employees. Among the employees shown here, the average compensation is $791,055. The highest compensated employee at Cystic Fibrosis Foundation is Jack Mahler, M.D. with fiscal year 2019 compensation of $1,583,838.

Revenue, expenses, and employee compensation

Revenue

$605,778,425

Expenses

$348,650,099

Employee compensation

$99,469,166
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Jack Mahler, M.D.
Chief Investment Officer
$1,583,838
$1,129,788 No related comp$454,050
Preston Campbell, M.D.
President and Chief Executive Officer
$1,456,768
$1,296,038 No related comp$160,730
Marc S Ginsky
Executive Vice President, COO and Secretary
$994,987
$798,697 No related comp$196,290
Eric Koehrsen
Managing Director, Investments
$905,483
$724,272 No related comp$181,211
Earl Lee
Managing Director, Investments
$827,204
$795,644 No related comp$31,560
Vera H Twigg
Executive Vice President and Chief Financial Officer
$733,155
$616,492 No related comp$116,663
Michael P Boyle, M.D.
Sr.Vp,Therapeutics Development
$682,992
$572,626 No related comp$110,366
William Skach, M.D.
Senior Vice President, Research Affairs
$662,285
$553,576 No related comp$108,709
Bruce Marshall, M.D.
Senior Vice President, Clinical Affairs
$615,485
$570,534 No related comp$44,951
Chris Gegelys
Senior Vice President, Chief Legal Officer
$585,421
$508,694 No related comp$76,727
Drucy S Borowitz, M.D.
Senior Vice President, Community Affairs
$570,636
$542,352 No related comp$28,284
Anthony Durmowicz, M.D.
Vice President, Clinical Development
$564,253
$519,124 No related comp$45,129

Benchmark Employee Compensation

Non-Employee Board Members

Carole B Griego, M.D.
Trustee
Catherine C McLoud
Chair
Chad T Moore
Trustee
David A Mount
Treasurer
Eric R Olson, Ph.D.
Trustee
John S Weinberg
Executive Vice Chair
Kc Bryan White
Trustee
Louis A Defalco
Vice Chair
Paul W Whetsell
Trustee
Richard J Gray, Esq
Vice Chair
Robert H Niehaus
Vice Chair
Steven Shak, M.D.
Trustee

Contractors

Vertex Pharmaceuticals Inc.
Contracted Research
$12,500,000
Clinical Research Sequencing Platfo
Contracted Research
$6,441,110
Corbus Pharmaceuticals Inc.
Contracted Research
$5,000,000
Arcturus Therapeutics Inc.
Contracted Research
$4,100,901
Laurent Pharmaceuticals Inc
Contracted Research
$3,600,000

Mission Statement

TO CURE CF AND PROVIDE ALL PEOPLE WITH CF THE OPPORTUNITY TO LEAD LONG, FULFILLING LIVES BY FUNDING RESEARCH AND DRUG DEVELOPMENT, PARTNERING WITH THE CF COMMUNITY, AND ADVANCING HIGH-QUALITY, SPECIALIZED CARE.

Revisions to this organization profile

November 14, 2025:
2024 Cystic Fibrosis Foundation 990 filed
November 12, 2024:
2023 Cystic Fibrosis Foundation 990 filed
November 14, 2023:
2022 Cystic Fibrosis Foundation 990 filed

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The Christopher Ricardo Cystic Fibrosis Foundation Inc
Aventura, Florida
Cystic Fibrosis Foundation Therapeutics Inc.
Bethesda, Maryland