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Organizations Diseases, Disorders & Medical Cystic Fibrosis Foundation

Cystic Fibrosis Foundation

Fiscal year ending 2021. Filed on November 15, 2022.

4550 Montgomery Avenue 1100n
Floor
Bethesda, Maryland 20814

Cystic Fibrosis Foundation (EIN: 13-1930701) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2021 IRS Form 990 filing, Cystic Fibrosis Foundation, a 501(c)(3) charitable organization, reported compensation for 15 out of 788 total employees. Among the employees shown here, the average compensation is $843,247. The highest compensated employee at Cystic Fibrosis Foundation is Jack Mahler, M.D. with fiscal year 2021 compensation of $2,058,545.

Revenue, expenses, and employee compensation

Revenue

$417,237,551

Expenses

$375,611,186

Employee compensation

$107,679,100
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Jack Mahler, M.D.
Chief Investment Officer
$2,058,545
$1,401,121 No related comp$657,424
Marc S Ginsky
COO (Until 8/2021)
$1,314,261
$1,245,811 No related comp$68,450
Michael P Boyle, M.D.
President and Chief Executive Officer
$1,191,993
$744,103 No related comp$447,890
Eric Koehrsen
Managing Director, Investments
$1,013,437
$796,581 No related comp$216,856
Earl Lee
Managing Director, Investments
$915,206
$724,883 No related comp$190,323
William Skach, M.D.
Executive Vice President and Chief Scientific Officer
$830,259
$653,362 No related comp$176,897
Vera H Twigg
CFO (Until 7/2021)
$726,820
$616,739 No related comp$110,081
Bruce Marshall, M.D.
Executive Vice President and Chief Medical Officer
$715,097
$578,644 No related comp$136,453
John P Clancy, M.D.
Vice President, Clinical Research
$607,603
$485,245 No related comp$122,358
Preston Campbell, M.D.
Former CEO and Strategic Advisor
$600,847
$399,495 No related comp$201,352
Chris Gegelys
Chief Legal Officer and Secretary
$585,850
$465,159 No related comp$120,691
Gentiana Arovas
Investment Operations Director
$584,594
$467,489 No related comp$117,105

Benchmark Employee Compensation

Non-Employee Board Members

Carole B Griego, M.D.
Trustee
Catherine C McLoud
Chair
Chad T Moore
Trustee
David A Mount
Treasurer
Dominic J Caruso
Trustee (AS of 5/2021)
Eric R Olson, Ph.D.
Vice Chair
Jessica H Boyd, M.D.
Trustee
John S Weinberg
Executive Vice Chair
Kc Bryan White
Trustee
Louis A Defalco
Vice Chair
Paul A Motenko
Trustee (AS of 5/2021)
Paul W Whetsell
Trustee

Contractors

Pioneering Medicine (Cf) LLC
Contracted Research
$12,000,000
Vertex Pharmaceuticals Inc.
Contracted Research
$10,000,000
Icagen Inc.
Contracted Research
$3,811,979
Microbion Corporation
Contracted Research
$3,395,005
Matinas Biopharma Inc.
Contracted Research
$3,176,058

Mission Statement

TO CURE CF AND PROVIDE ALL PEOPLE WITH CF THE OPPORTUNITY TO LEAD LONG, FULFILLING LIVES BY FUNDING RESEARCH AND DRUG DEVELOPMENT, PARTNERING WITH THE CF COMMUNITY, AND ADVANCING HIGH-QUALITY, SPECIALIZED CARE.

Revisions to this organization profile

November 14, 2025:
2024 Cystic Fibrosis Foundation 990 filed
November 12, 2024:
2023 Cystic Fibrosis Foundation 990 filed
November 14, 2023:
2022 Cystic Fibrosis Foundation 990 filed

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The Christopher Ricardo Cystic Fibrosis Foundation Inc
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Cystic Fibrosis Foundation Therapeutics Inc.
Bethesda, Maryland