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Organizations Diseases, Disorders & Medical Cystic Fibrosis Foundation

Cystic Fibrosis Foundation

Fiscal year ending 2023. Filed on November 12, 2024.

4550 Montgomery Avenue 1100n
1n-c08
Bethesda, Maryland 20814

Cystic Fibrosis Foundation (EIN: 13-1930701) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2023 IRS Form 990 filing, Cystic Fibrosis Foundation, a 501(c)(3) charitable organization, reported compensation for 13 out of 847 total employees. Among the employees shown here, the average compensation is $999,019. The highest compensated employee at Cystic Fibrosis Foundation is John C Mahler Jr with fiscal year 2023 compensation of $2,822,596.

Revenue, expenses, and employee compensation

Revenue

$292,016,280

Expenses

$443,404,599

Employee compensation

$127,953,243
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

John C Mahler Jr
Chief Investment Officer
$2,822,596
$2,747,771 No related comp$74,825
Michael P Boyle, M.D.
President and Chief Executive Officer
$1,472,782
$1,372,546 No related comp$100,236
Earl A Lee
Managing Director, Investments
$1,397,110
$1,114,424 No related comp$282,686
Andrew Lewis
Managing Director, Investments
$1,318,447
$1,268,837 No related comp$49,610
Eric Koehrsen
Managing Director, Investments
$1,218,507
$949,505 No related comp$269,002
Bruce Marshall, M.D.
Executive Vice President and Chief Medical Officer
$777,958
$741,926 No related comp$36,032
John P Clancy, M.D.
Senior Vice President, Clinical Research
$749,355
$659,434 No related comp$89,921
Irena Barisic
Executive Vice President, Chief Oper/Fin Officer
$742,637
$692,433 No related comp$50,204
Gentiana S Arovas
Managing Director, Investments
$731,737
$541,296 No related comp$190,441
Albert Faro
Vice President Clinical Affairs
$642,770
$517,875 No related comp$124,895
Michael B Cavadel
Senior Vice President, Chief Legal Officer
$576,547
$494,693 No related comp$81,854
William Skach, M.D.
Executive Vice President and Chief Scientific Officer
$279,304
$277,714 No related comp$1,590

Benchmark Employee Compensation

Non-Employee Board Members

Carole B Griego, M.D.
Trustee
David A Mount
Treasurer
Dodzie Sogah, Ph.D.
Trustee
Dominic J Caruso
Trustee
Eric R Olson, Ph.D.
Vice Chair
Eric Schneider, M.D.
Trustee
Jessica H Boyd, M.D.
Trustee
John S Weinberg
Executive Vice Chair
Kate O'Donnell
Trustee
Kc Bryan White
Chair
Louis A Defalco
Vice Chair
Paul A Motenko
Trustee

Contractors

Pioneering Medicine (Cf) LLC
Contracted Research
$16,730,000
Arcturus Therapeutics Inc.
Contracted Research
$11,065,017
Vertex Pharmaceuticals Inc.
Contracted Research
$7,500,000
Anagram Therapeutics Inc.
Contracted Research
$6,500,000
Freeman Decorating CO
Event
$1,722,580

Mission Statement

TO CURE CF AND PROVIDE ALL PEOPLE WITH CF THE OPPORTUNITY TO LEAD LONG, FULFILLING LIVES BY FUNDING RESEARCH AND DRUG DEVELOPMENT, PARTNERING WITH THE CF COMMUNITY, AND ADVANCING HIGH-QUALITY, SPECIALIZED CARE.

Revisions to this organization profile

November 14, 2025:
2024 Cystic Fibrosis Foundation 990 filed
November 12, 2024:
2023 Cystic Fibrosis Foundation 990 filed
November 14, 2023:
2022 Cystic Fibrosis Foundation 990 filed

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The Christopher Ricardo Cystic Fibrosis Foundation Inc
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Cystic Fibrosis Foundation Therapeutics Inc.
Bethesda, Maryland