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Organizations Philanthropy, Voluntarism & Grantmaking Dravet Syndrome Foundation Inc.

Dravet Syndrome Foundation Inc.

Fiscal year ending 2024. Filed on April 22, 2025.

PO Box 3026
Cherry Hill, New Jersey 08034

Dravet Syndrome Foundation Inc. (EIN: 27-0924627) has filed an IRS Form 990 since fiscal year 2019. In its fiscal year 2024 IRS Form 990 filing, Dravet Syndrome Foundation Inc., a 501(c)(3) charitable organization, reported compensation for 3 out of 13 total employees. Among the employees shown here, the average compensation is $148,970. The highest compensated employee at Dravet Syndrome Foundation Inc. is Mary Anne Meskis with fiscal year 2024 compensation of $172,586.

Revenue, expenses, and employee compensation

Revenue

$4,221,622

Expenses

$4,259,172

Employee compensation

$841,275
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Mary Anne Meskis
Executive Director
$172,586
$172,586 No related compNo other comp
Veronica Hood
Scientific Director
$165,459
$165,459 No related compNo other comp
Jamie Cohen
Finance and Program Director
$108,866
$108,866 No related compNo other comp

Benchmark Employee Compensation

Non-Employee Board Members

Amanda Prather
Trustee
Ashley Kerns
Trustee
Bill Kirshner
Trustee
Claire Carey
Secretary
Gail Farfel
Trustee
Joseph Sullivan, M.D.
Trustee
Josh Goldman
Treasurer
Nathan Batt
Trustee
Ross Nicholas
Vice President
Ted Odlaug, Ph.D.
President

Contractors

Geben Communication
Media Relations
$150,000

Mission Statement

The mission of the Dravet Syndrome Foundation is to aggressively raise funds for Dravet syndrome & related epilepsies; support & fund research; increase awareness; & provide support to affected individuals & families. We understand the ongoing need to fund innovative research, the urgency in finding better treatments, the motivation of our donors to make an impact specifically in the fields of Dravet syndrome and related epilepsies, the importance of transparency and accountability of not only our organization, but the researchers that we fund, and the need for global collaboration in order to find a cure.

Revisions to this organization profile

April 22, 2025:
2024 Dravet Syndrome Foundation Inc. 990 filed
April 16, 2024:
2023 Dravet Syndrome Foundation Inc. 990 filed
April 17, 2023:
2022 Dravet Syndrome Foundation Inc. 990 filed

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