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Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

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Organizations Medical Research Forgotten Diseases Research Foundation

Forgotten Diseases Research Foundation

Fiscal year ending 2024. Filed on May 30, 2025.

604 Malarin Ave
Santa Clara, California 95050

Forgotten Diseases Research Foundation (EIN: 45-4470463) has filed an IRS Form 990 since fiscal year 2020. In its fiscal year 2024 IRS Form 990 filing, Forgotten Diseases Research Foundation, a 501(c)(3) charitable organization, reported compensation for 4 employees. Among the employees shown here, the average compensation is $32,993. The highest compensated employee at Forgotten Diseases Research Foundation is Valerie Natale with fiscal year 2024 compensation of $59,625.

Revenue, expenses, and employee compensation

Revenue

$87,074

Expenses

$83,404

Employee compensation

—
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Valerie Natale
Treasurer
$59,625
$59,625 No related compNo other comp
Martin Oconnor
President
$6,360
$6,360 No related compNo other comp
Natalia Lukomski Quiroz
Secretary
$0
Heather Kerr
Board Member
$0

Benchmark Employee Compensation

Mission Statement

THE FORGOTTEN DISEASES RESEARCH FOUNDATION IS A NONPROFIT DEDICATED TO VERY RARE DISORDERS. THE GOALS ARE TO IMPROVE THE QUALITY OF LIFE OF PATIENTS WITH THESE DISORDERS AND TO IMPROVE RESEARCH PRACTICES IN THE FOLLOWING WAYS: -CREATING A SINGLE PLACE FOR DISSEMINATING INFORMATION ABOUT VERY RARE DISEASES. -HELPING PEOPLE DIAGNOSE VERY RARE DISEASES. -DISCOVERING THE MOST ROBUST SCIENTIFIC APPROACHES TO STUDYING RARE DISEASES. -DISSEMINATING INFORMATION TO FAMILIES THAT WILL HELP THEM CARE FOR SICK FAMILY MEMBERS. -EDUCATING THE PUBLIC ABOUT WHAT CAN BE LEARNED FROM THE STUDY OF RARE DISEASES. -MAKING PHYSICIANS MORE KNOWLEDGEABLE ABOUT THESE DISEASES.

Revisions to this organization profile

May 30, 2025:
2024 Forgotten Diseases Research Foundation 990 filed
June 26, 2024:
2023 Forgotten Diseases Research Foundation 990 filed
October 14, 2023:
2022 Forgotten Diseases Research Foundation 990 filed

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