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Organizations Medical Research Friedreich's Ataxia Research Alliance

Friedreich's Ataxia Research Alliance

Fiscal year ending 2024. Filed on October 16, 2025.

PO Box 1537
Stephenson Parkway
Springfield, Virginia 22151

Friedreich's Ataxia Research Alliance (EIN: 52-2122720) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2024 IRS Form 990 filing, Friedreich's Ataxia Research Alliance, a 501(c)(3) charitable organization, reported compensation for 6 out of 19 total employees. Among the employees shown here, the average compensation is $143,083. The highest compensated employee at Friedreich's Ataxia Research Alliance is Barbara A Tate with fiscal year 2024 compensation of $255,527.

Revenue, expenses, and employee compensation

Revenue

$13,135,426

Expenses

$13,277,236

Employee compensation

$1,572,657
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Barbara A Tate
Chief Scientific Officer
$255,527
$250,000 No related comp$5,527
Jennifer M Farmer
Chief Executive Officer
$170,678
$165,000 No related comp$5,678
Elisabetta Soragni
Research Director
$131,874
$115,851 No related comp$16,023
Felicia Derosa
Vice President Fundraising and Comms
$118,643
$106,351 No related comp$12,292
Ronald Bartek
President and Director
$113,811
$110,000 No related comp$3,811
Ruth Acton
Treasurer/Director Finance
$67,964
$51,000 No related comp$16,964

Benchmark Employee Compensation

Non-Employee Board Members

Alex Fielding
Director
Brigid Brennan
Director/ General Counsel
Derek G Hennecke
Director
Dr Holly Hedrick
Director
Dr James McArthur
Director
Dr James R Rusche
Director
Dr Kathy Mathews
Director
Dr Sanjay Bidichandani
Director
Dr Steve Klasko
Director
Jennifer Good
Director
Maureen Juip
Secretary and Director
Patrick Ritschel
Director

Contractors

Camene Bvba-Myriam Abouazar-Rai
International Research and Advocacy Cons
$132,135

Mission Statement

TO MARSHAL AND FOCUS THE RESOURCES AND RELATIONSHIPS NEEDED TO CURE FA BY RAISING FUNDS FOR RESEARCH, PROMOTING PUBLIC AWARENESS AND ALIGNING SCIENTISTS, PATIENTS, CLINICIANS, GOVERNMENT AGENCIES AND PHARMACEUTICAL COMPANIES DEDICATED TO CURING FA AND RELATED DISORDERS.

Revisions to this organization profile

October 16, 2025:
2024 Friedreich's Ataxia Research Alliance 990 filed
August 13, 2024:
2023 Friedreich's Ataxia Research Alliance 990 filed
July 14, 2023:
2022 Friedreich's Ataxia Research Alliance 990 filed

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