Global Genes

Fiscal year ending 2024. Filed on October 24, 2025.

1012 14th Street NW Suite 500
Washington, District of Columbia 20005

Global Genes (EIN: 26-3331487) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2024 IRS Form 990 filing, Global Genes, a 501(c)(3) charitable organization, reported compensation for 8 out of 38 total employees. Among the employees shown here, the average compensation is $193,730. The highest compensated employee at Global Genes is Charlene Son Rigby with fiscal year 2024 compensation of $319,961.

Revenue, expenses, and employee compensation

Revenue

$7,145,531

Expenses

$7,415,893

Employee compensation

$3,960,600
Revenue, expenses, and employee compensation over time

Mission Statement

GLOBAL GENES' MISSION IS TO DRIVE CHANGE THROUGH THE SUPPORT OF RARE DISEASE PATIENTS AND FAMILIES WHILE EQUIPPING ADVOCACY LEADERS WITH IMPORTANT TOOLS, RESOURCES, MENTORING, AND CONNECTIONS TO FURTHER ADVANCE AWARENESS, EDUCATION, AND RESEARCH.

Revisions to this organization profile

October 24, 2025:
2024 Global Genes 990 filed
September 25, 2024:
2023 Global Genes 990 filed
November 14, 2023:
2022 Global Genes 990 filed

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