Compensation 990

Gorlin Syndrome Alliance

Fiscal year ending 2024. Filed on November 5, 2025.

3005 S Lamar Blvd D 109 264
Austin, Texas 78704

Gorlin Syndrome Alliance (EIN: 34-1915691) has filed an IRS Form 990 between fiscal years 2016 and 2024. In its fiscal year 2024 IRS Form 990 filing, Gorlin Syndrome Alliance, a 501(c)(3) charitable organization, reported compensation for 2 out of 3 total employees. Among the employees shown here, the average compensation is $66,633. The highest compensated employee at Gorlin Syndrome Alliance is Julia Breneiser with fiscal year 2024 compensation of $92,129. Gorlin Syndrome Alliance changed its name from Basal Cell Carcinoma Nevus Syndrome Life Support Network in 2019.

Revenue, expenses, and employee compensation

Revenue

$489,524

Expenses

$430,424

Employee compensation

$322,924
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Non-Employee Board Members

Alix Alderman
Director Joined Board in SEP
Beth Spiegel
Treasurer
Dr Elena Hawryluk
Director
Dr Jim Swift
Director
Jenni Werkmeister
Director Rolled OFF Board in JUNE
Kevin Gullatt
President Starting in March
Michael Rainen
Director
Roni Rubenstein
Secretary
Samuel Breneiser
Director
Stacy Bissell
Director
Taylor Hodge
Vice President

Mission Statement

TO THOUGHTFULLY SUPPORT, COMPREHENSIVELY EDUCATE, AND AGGRESSIVELY SEEK THE BEST TREATMENTS AND A CURE FOR THOSE AFFECTED BY GORLIN SYNDROME.

Revisions to this organization profile

November 5, 2025:
2024 Gorlin Syndrome Alliance 990 filed
November 15, 2024:
2023 Gorlin Syndrome Alliance 990 filed
July 22, 2024:
2022 Gorlin Syndrome Alliance 990 filed

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