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Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

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Organizations Diseases, Disorders & Medical Gorlin Syndrome Alliance

Gorlin Syndrome Alliance

Fiscal year ending 2021. Filed on November 15, 2022.

P O Box 4
Reading, Pennsylvania 19607

Gorlin Syndrome Alliance (EIN: 34-1915691) has filed an IRS Form 990 between fiscal years 2016 and 2024. In its fiscal year 2021 IRS Form 990 filing, Gorlin Syndrome Alliance, a 501(c)(3) charitable organization, reported compensation for 11 employees. Among the employees shown here, the average compensation is $96,926. The highest compensated employee at Gorlin Syndrome Alliance is Julie Breneiser with fiscal year 2021 compensation of $96,926. Gorlin Syndrome Alliance changed its name from Basal Cell Carcinoma Nevus Syndrome Life Support Network in 2019.

Revenue, expenses, and employee compensation

Revenue

$361,122

Expenses

$363,534

Employee compensation

—
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Julie Breneiser
Executive Director
$96,926
$75,614 No related comp$21,312
Michael Rainen
Trustee
$0
Roni Rubenstein
Secretary
$0
Dr Elena Hawryluk
Trustee
$0
Meredith Weiss
President
$0
Kevin Gullatt
Trustee
$0
Beth Spiegel
Vice President
$0
Dr James Swift
Trustee
$0
Stacy Bissell
Trustee
$0
Jenni Werkmeister
Trustee
$0
Sam Breneiser
Treasurer
$0

Benchmark Employee Compensation

Non-Employee Board Members

No board members were reported during this fiscal year.

Mission Statement

TO THOUGHTFULLY SUPPORT, COMPREHENSIVELY EDUCATE, AND AGGRESSIVELY SEEK THE BEST TREATMENTS AND A CURE FOR THOSE AFFECTED BY GORLIN SYNDROME.

Revisions to this organization profile

November 5, 2025:
2024 Gorlin Syndrome Alliance 990 filed
November 15, 2024:
2023 Gorlin Syndrome Alliance 990 filed
July 22, 2024:
2022 Gorlin Syndrome Alliance 990 filed

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