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Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

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Organizations Human Services Hermansky Pudlak Syndrome Network

Hermansky Pudlak Syndrome Network

Fiscal year ending 2018. Filed on June 17, 2019.

One South Road
Oyster Bay Cove, New York 11771

Hermansky Pudlak Syndrome Network (EIN: 11-3283268) has filed an IRS Form 990 since fiscal year 2017. In its fiscal year 2018 IRS Form 990 filing, Hermansky Pudlak Syndrome Network, a 501(c)(3) charitable organization, reported compensation for 2 out of 5 total employees. Among the employees shown here, the average compensation is $10,797. The highest compensated employee at Hermansky Pudlak Syndrome Network is Donna Appell with fiscal year 2018 compensation of $11,180.

Revenue, expenses, and employee compensation

Revenue

$334,953

Expenses

$326,596

Employee compensation

$88,203
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Donna Appell
President
$11,180
$11,180 No related compNo other comp
Heather Kirkwood
Vice President and Secretary
$10,413
$10,413 No related compNo other comp

Benchmark Employee Compensation

Non-Employee Board Members

Richard Appell
Treasurer

Mission Statement

THE HERMANSKY-PUDLAK SYNDROME (HPS) NETWORK'S MISSION IS TO PROVIDE ADVOCACY, FELLOWSHIP, EDUCATION AND HOPE TO INDIVIDUALS AND FAMILIES AFFECTED BY HPS. WE FUND AND FACILITATE RESEARCH. WE DEVELOPE AND PRODUCE MATERIAL AND RESOURSES FOR HEALTHCARE.

Revisions to this organization profile

March 5, 2025:
Amended (originally filed January 31, 2025)2024 Hermansky Pudlak Syndrome Network 990 filed
June 5, 2024:
2023 Hermansky Pudlak Syndrome Network 990 filed
March 9, 2023:
2022 Hermansky Pudlak Syndrome Network 990 filed

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