Huntington Study Group Ltd.

Fiscal year ending 2024. Filed on September 22, 2025.

95 Allens Creek Bldg 1 132
Rochester, New York 14618

Huntington Study Group Ltd. (EIN: 45-5557987) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2024 IRS Form 990 filing, Huntington Study Group Ltd., a 501(c)(3) charitable organization, reported compensation for 8 out of 36 total employees. Among the employees shown here, the average compensation is $193,872. The highest compensated employee at Huntington Study Group Ltd. is Shari Kinel, Jd with fiscal year 2024 compensation of $282,263.

Revenue, expenses, and employee compensation

Revenue

$5,041,772

Expenses

$4,916,902

Employee compensation

$1,601,686
Revenue, expenses, and employee compensation over time

Contractors

Mission Statement

THE HUNTINGTON STUDY GROUP (HSG) IS DEDICATED TO THE MISSION: TO SEEK TREATMENTS THAT MAKE A DIFFERENCE TO THOSE AFFECTED BY HUNTINGTON DISEASE. DESCRIPTION CONTINUED ON SCHEDULE O.SPECIFICALLY, THE HSG FOCUSES ON THE CONCEPTION, CONDUCT, ANALYSES, SCIENTIFIC REPORTING, AND COMMUNICATION OF CLINICAL RESEARCH, INCLUDING TREATMENT AND OBSERVATIONAL TRIALS, AIMED AT RELIEVING THE BURDENS AND SLOWING THE PROGRESSION OF HD. THE HSG 1) IDENTIFIES AND PRIORITIZES INITIATIVES THAT CAN HAVE AN IMPACT ON PATIENT CARE; 2) ADVANCES KNOWLEDGE ABOUT THE CAUSE, DISEASE PROGRESSION AND TREATMENT OF HD AND RELATED DISORDERS; AND 3) COLLABORATES WITH GOVERNMENT, FOUNDATIONS, INDUSTRY, AND THE HD COMMUNITY TO EFFECTIVELY PLAN, EXECUTE AND DISSEMINATE RESEARCH AND NEW KNOWLEDGE RELATED TO HD.

Revisions to this organization profile

September 22, 2025:
2024 Huntington Study Group Ltd. 990 filed
November 15, 2024:
2023 Huntington Study Group Ltd. 990 filed
November 14, 2023:
2022 Huntington Study Group Ltd. 990 filed

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