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Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

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Organizations Diseases, Disorders & Medical Illinois Spina Bifida Association

Illinois Spina Bifida Association

Fiscal year ending 2024. Filed on November 14, 2025.

2211 N Oak Park Ave
Chicago, Illinois 60707

Illinois Spina Bifida Association (EIN: 23-7062317) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2024 IRS Form 990 filing, Illinois Spina Bifida Association, a 501(c)(3) charitable organization, reported compensation for 1 out of 10 total employees. Among the employees shown here, the average compensation is $106,957. The highest compensated employee at Illinois Spina Bifida Association is Matt Larsen with fiscal year 2024 compensation of $106,957.

Revenue, expenses, and employee compensation

Revenue

$268,168

Expenses

$308,580

Employee compensation

$196,880
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Matt Larsen
Executive Director
$106,957
$81,142 No related comp$25,815

Benchmark Employee Compensation

Non-Employee Board Members

Blanca Jara
Vice Chair
Chris Byrne
Director
Derek Snyder
Director
Erika Holliday
Director
James Marks
Treasurer
Jessica Barclay
Director Resigned 2024
Kevin Dam
Director
Mary Jo Grill
Director
Nathan Parris
Secretary
Paul Gerber
Director Resigned 2024
Rebecca Rupnick
Chair

Mission Statement

An organization that works to improve the quality of life of children, adults, and families living with spina bifida, a lifelong neurological condition that affects the spine and is usually apparent at birth. ISBA works to accomplish its mission with a three-part strategy.

Revisions to this organization profile

November 14, 2025:
2024 Illinois Spina Bifida Association 990 filed
October 17, 2024:
2023 Illinois Spina Bifida Association 990 filed
September 20, 2023:
2022 Illinois Spina Bifida Association 990 filed

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