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Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

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Organizations Diseases, Disorders & Medical International Neuroendocrine Cancer Alliance

International Neuroendocrine Cancer Alliance

Fiscal year ending 2017. Filed on November 12, 2018.

1150 Walnut Street
Newton, Massachusetts 02461

International Neuroendocrine Cancer Alliance (EIN: 46-2961023) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2017 IRS Form 990 filing, International Neuroendocrine Cancer Alliance, a 501(c)(3) charitable organization, reported compensation for 7 employees. Among the employees shown here, the average compensation is $0.

Revenue, expenses, and employee compensation

Revenue

$192,197

Expenses

$173,258

Employee compensation

—
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Simone Leyden
President
$0
Dirk van Genechten
Director
$0
Catherine Bouvier
Director
$0
Tore Sbu
Director
$0
Ron Hollander
Director
$0
Mark McDonnell
Treasurer
$0
Yoshiyuki Majima
Secretary
$0

Benchmark Employee Compensation

Non-Employee Board Members

No board members were reported during this fiscal year.

Mission Statement

Organization's mission is to be the global advocate for neuroendocrine cancer patients. Statements of Purpose:1. Serving as the global voice in support of neuroendocrine cancer patients and facilitator of global action;2. Raising awareness about neuroendocrine cancer among members of the healthcare community and the general public;3. Supporting research to develop better treatments and cures for all forms of neuroendocrine cancer;4. Disseminating accurate information about neuroendocrine cancer;5. Helping members of the corporation to better achieve their goals through global collaboration;6. Sharing best practices and experiences with member organizations and other neuroendocrine cancer groups from around the world in order to build their capacity; and7. Mentoring newly established, and guiding those who wish to establish, neuroendocrine cancer patient and patient advocate groups.

Revisions to this organization profile

October 28, 2025:
2024 International Neuroendocrine Cancer Alliance 990 filed
February 22, 2024:
2023 International Neuroendocrine Cancer Alliance 990 filed
February 28, 2023:
2022 International Neuroendocrine Cancer Alliance 990 filed

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