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Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

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Organizations Philanthropy, Voluntarism & Grantmaking Joubert Syndrome and Related Disorders Foundation

Joubert Syndrome and Related Disorders Foundation

Fiscal year ending 2024. Filed on October 8, 2025.

15411 Starling Crossing Dr
5000
Lithia, Florida 33547

Joubert Syndrome and Related Disorders Foundation (EIN: 52-1871536) has filed an IRS Form 990 between fiscal years 2016 and 2024. In its fiscal year 2024 IRS Form 990 filing, Joubert Syndrome and Related Disorders Foundation, a 501(c)(3) charitable organization, reported compensation for 12 employees. Among the employees shown here, the average compensation is $0.

Revenue, expenses, and employee compensation

Revenue

$69,166

Expenses

$21,709

Employee compensation

—
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Devin Hays
Director
$0
Courtney Eddy
Director
$0
Stephen Mack
President
$0
Amy Ballock
Secretary
$0
Jessika Garis
Treasurer
$0
Sarah Borders
Director
$0
Kristin Chako
Director
$0
Cindy Schmitt
Director
$0
Melissa Fields
President-Elect
$0
Lori Morton
Director
$0
Matt Ballock
Director
$0
Cassie Meiers
Director
$0

Benchmark Employee Compensation

Non-Employee Board Members

No board members were reported during this fiscal year.

Mission Statement

PROVIDING AN INTERNATIONAL NETWORK OF PARENTS WHO SHARE KNOWLEDGE, EXPERIENCE, AND EMOTIONAL SUPPORT. THE FOUNDATION OFFERS A NETWORKING LIST, NEWSLETTER, AND A BIENNIAL CONFERENCE. THE JOUBERT SYNDROME & RELATED DISORDERS FOUNDATION PLAYS AN IMPORTANT ROLE IN EDUCATING PHYSICIANS AND THEIR SUPPORT TEAMS AS WELL AS INCREASING PUBLIC AWARENESS.

Revisions to this organization profile

October 8, 2025:
2024 Joubert Syndrome and Related Disorders Foundation 990 filed
October 25, 2024:
2023 Joubert Syndrome and Related Disorders Foundation 990 filed
November 10, 2023:
2022 Joubert Syndrome and Related Disorders Foundation 990 filed

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