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Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

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Organizations Philanthropy, Voluntarism & Grantmaking Joubert Syndrome and Related Disorders Foundation

Joubert Syndrome and Related Disorders Foundation

Fiscal year ending 2023. Filed on October 25, 2024.

15411 Starling Crossing Dr
5000
Lithia, Florida 33547

Joubert Syndrome and Related Disorders Foundation (EIN: 52-1871536) has filed an IRS Form 990 between fiscal years 2016 and 2024. In its fiscal year 2023 IRS Form 990 filing, Joubert Syndrome and Related Disorders Foundation, a 501(c)(3) charitable organization, reported compensation for 12 employees. Among the employees shown here, the average compensation is $0.

Revenue, expenses, and employee compensation

Revenue

$137,061

Expenses

$363,752

Employee compensation

—
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Kristin Chacko
Director
$0
Amy Ballock
Secretary
$0
Jenni Swenson
President (Thru 12/23)
$0
Chuck Soder
Treasurer (Thru 12/23)
$0
Matt Ballock
Director
$0
Devin Hays
Director
$0
Jessika Garis
Treasurer
$0
Stephen Mack
President
$0
Denise Mack
Secretary (Thru 12/23)
$0
Courtney Eddy
Director
$0
Sarah Borders
Director
$0
Melissa Fields
President-Elect
$0

Benchmark Employee Compensation

Non-Employee Board Members

No board members were reported during this fiscal year.

Mission Statement

PROVIDING AN INTERNATIONAL NETWORK OF PARENTS WHO SHARE KNOWLEDGE, EXPERIENCE, AND EMOTIONAL SUPPORT. THE FOUNDATION OFFERS A NETWORKING LIST, NEWSLETTER, AND A BIENNIAL CONFERENCE. THE JOUBERT SYNDROME & RELATED DISORDERS FOUNDATION PLAYS AN IMPORTANT ROLE IN EDUCATING PHYSICIANS AND THEIR SUPPORT TEAMS AS WELL AS INCREASING PUBLIC AWARENESS.

Revisions to this organization profile

October 8, 2025:
2024 Joubert Syndrome and Related Disorders Foundation 990 filed
October 25, 2024:
2023 Joubert Syndrome and Related Disorders Foundation 990 filed
November 10, 2023:
2022 Joubert Syndrome and Related Disorders Foundation 990 filed

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