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Organizations Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd.

Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd.

Fiscal year ending 2024. Filed on September 3, 2025.

5550 West Touhy Ave 302
Lake Shore Drive
Skokie, Illinois 60077

Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd. (EIN: 36-2916466) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2024 IRS Form 990 filing, Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd., a 501(c)(3) charitable organization, reported compensation for 4 out of 19 total employees. Among the employees shown here, the average compensation is $159,429. The highest compensated employee at Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd. is Laura Freveletti with fiscal year 2024 compensation of $239,077.

Revenue, expenses, and employee compensation

Revenue

$4,524,784

Expenses

$3,333,281

Employee compensation

$1,457,602
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Laura Freveletti
Chief Executive Officer
$239,077
$191,209 No related comp$47,868
Lauren Webb
Chief Advocacy and Outreach Officer
$148,182
$120,634 No related comp$27,548
Mark Heiden
Communications Director
$132,472
$127,500 No related comp$4,972
Constance Paesel
Chief Operating Officer
$117,983
$113,500 No related comp$4,483

Benchmark Employee Compensation

Non-Employee Board Members

Aalok Dave
Director
Bonny Gaffen
Director
Deborah Crockett
Treasurer
Diana Pisone
Director
Erin Reardon Cohn
Board Chair
Frank Granata
Director
Harvey Gaffen
Chair Emeritus
Janene Jonas
Director
Jodi M Harris
Director
Joel A Schechter
Vice Chair
John Coleman III, M.D.
Vice Chair
Joshua Newsome
Director

Mission Statement

TO PROVIDE THE MOST COMPREHENSIVE CARE AND SUPPORT TO PEOPLE LIVING WITH ALS AND THEIR FAMILIES IN CHICAGOLAND, SO THEY CAN CONFIDENTLY NAVIGATE THE DISEASE, AND ADVANCE SCIENTIFIC RESEARCH FOR THE PREVENTION, TREATMENT AND CURE OF ALS.

Revisions to this organization profile

September 3, 2025:
2024 Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd. 990 filed
July 26, 2024:
2023 Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd. 990 filed
June 27, 2023:
2022 Les Turner Amyotrophic Lateral Sclerosis Foundation Ltd. 990 filed

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