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Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

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Organizations Medical Research Lupus Research Alliance Inc.

Lupus Research Alliance Inc.

Fiscal year ending 2021. Filed on September 14, 2022.

270 Madison Avenue Suite 300
Tower 650
New York, New York 10016

Lupus Research Alliance Inc. (EIN: 58-2492929) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2021 IRS Form 990 filing, Lupus Research Alliance Inc., a 501(c)(3) charitable organization, reported compensation for 10 out of 59 total employees. Among the employees shown here, the average compensation is $277,842. The highest compensated employee at Lupus Research Alliance Inc. is Kenneth M Farber with fiscal year 2021 compensation of $510,831. Lupus Research Alliance Inc. changed its name from Lupus Research Alliance Inc. F/K/a Alliance for Lupus Research Inc. in 2017.

Revenue, expenses, and employee compensation

Revenue

$23,780,030

Expenses

$26,772,083

Employee compensation

$6,237,294
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Kenneth M Farber
President and Chief Executive Officer
$510,831
$429,366 No related comp$81,465
Teodora Staeva
Chief Scientific Officer
$363,732
$300,802 No related comp$62,930
Albert Roy
Executive Director, Lucin
$350,054
$273,196 No related comp$76,858
Andrea O'Neill
Executive Director
$321,888
$271,791 No related comp$50,097
Debra Rose
Chief Financial Officer
$267,034
$220,556 No related comp$46,478
Penelope Mitchell
Communications Director
$207,965
$172,180 No related comp$35,785
Dorey Neilinger
Senior Director of Philant
$207,627
$172,399 No related comp$35,228
Jonathan Marks
Director of Corporate DEVE
$192,837
$143,834 No related comp$49,003
Diane Gross
National Director of Advoc
$182,564
$139,784 No related comp$42,780
Margy Meislin
Editorial and PR Director
$173,890
$133,197 No related comp$40,693

Benchmark Employee Compensation

Non-Employee Board Members

Bishop Rudy V Carlton
Director
Brenda Blackmon
Secretary
Carol Weisman
Director
Daniel J Wallace
Director
Daniel Lavecchia
Director
David Kies
Director
Ira Akselrad
Co-Chair
Jennie Descherer
Director
Jerome Chazen
Director
Joe Germanotta
Director
Joseph Mauriello
Treasurer
Julius Williams
Director

Contractors

Convergency LLC
FDA Consultant
$195,000
Kim Kaiser & Associates LLC
Pharma Relations Consultant
$185,788
EG&A Cirp Dba Mcs Healthcare PR
Public Relations Consultant
$170,555
Hypatia Project LLC
Clinical Ops Consultant
$140,447
Lautman Maska Neil & CO
Direct Response Consultants
$114,050

Mission Statement

PUTTING PEOPLE WITH LUPUS AT THE CENTER OF ALL WE DO, THE LUPUS RESEARCH ALLIANCE DRIVES THE DISCOVERY & DEVELOPMENT OF NEXT GENERATION LUPUS DIAGNOSTICS AND CURATIVE TREATMENTS THROUGH INNOVATIVE RESEARCH & COLLABORATIONS.

Revisions to this organization profile

September 11, 2025:
2024 Lupus Research Alliance Inc. 990 filed
September 20, 2024:
2023 Lupus Research Alliance Inc. 990 filed
September 15, 2023:
2022 Lupus Research Alliance Inc. 990 filed

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