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Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

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Organizations Diseases, Disorders & Medical Muscular Dystrophy Association Inc.

Muscular Dystrophy Association Inc.

Fiscal year ending 2016. Filed on November 10, 2017.

222 South Riverside Plaza Suite 150
Street Box 49
Chicago, Illinois 60606

Muscular Dystrophy Association Inc. (EIN: 13-1665552) has filed an IRS Form 990 between fiscal years 2016 and 2023. In its fiscal year 2016 IRS Form 990 filing, Muscular Dystrophy Association Inc., a 501(c)(3) charitable organization, reported compensation for 13 out of 1,020 total employees. Among the employees shown here, the average compensation is $232,927. The highest compensated employee at Muscular Dystrophy Association Inc. is Steven M Derks with fiscal year 2016 compensation of $563,073.

Revenue, expenses, and employee compensation

Revenue

$120,660,402

Expenses

$118,081,305

Employee compensation

$56,846,712
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Steven M Derks
President and Chief Executive Officer
$563,073
$475,679 No related comp$87,394
Valerie A Cwik, M.D.
ASST Sec.Chief MED Scientific
$246,464
$240,003 No related comp$6,461
Julie Faber, Cpa
ASST Treasurer and CFO
$245,725
$239,264 No related comp$6,461
Steven G Ford
Evp-Chief Comm/Mrkt Officer
$225,018
$209,009 No related comp$16,009
Robert M Grinsfelder
Executive Vice President - Chief Fields OPS Officer
$222,757
$212,691 No related comp$10,066
Jeannine M Houlihan
Chief Information Officer
$206,023
$203,651 No related comp$2,372
Gail Schmertz Kerner, Esq
Chief Legal Officer
$204,863
$188,785 No related comp$16,078
Grace K Pavlath, Ph.D.
Senior Vice President - Scientific PROG Director
$200,001
$189,935 No related comp$10,066
Eileen M Timmins, Ph.D.
Executive Vice President - Chief People Officer
$196,527
$186,859 No related comp$9,668
Nancy Stinson Harris
NVP of CORP Partnership
$195,132
$187,637 No related comp$7,495
John Walsh
Division Chief Executive
$188,307
$172,298 No related comp$16,009
Ann McNamara
Executive Vice President - Chief DEV Officer
$173,906
$173,286 No related comp$620

Benchmark Employee Compensation

Non-Employee Board Members

Benjamin F Cumbo III
Director
C Thomas Caskey, M.D.
Director
Charles D Schoor, Esq
Secretary
Christopher J Rosa, Ph.D.
Vice Chair
Daniel G Fries
Director
Dave Hutton
Director
Governor Brad Henry
Director
Harold C Crump
Director
John Tognino
Director
Kristine Welker
Director
Lilian Wu, Ph.D.
Director
Louis M Kunkel, Ph.D.
Director

Contractors

Worldwide Printing Distribution I
Direct Mail
$2,701,477
Causemedia Group LLC
Digital Marketing
$848,877
Thompson Habib Denison Inc
Direct Mail
$759,280
Robert Half International Inc.
Temp Staffing
$603,948
Roi Solutions Inc.
Database Management
$418,502

Mission Statement

MUSCULAR DYSTROPHY ASSOCIATION (MDA) IS THE #1 VOLUNTARY HEALTH ORGANIZATION IN THE UNITED STATES FOR PEOPLE LIVING WITH MUSCULAR DYSTROPHY, ALS, AND RELATED NEUROMUSCULAR DISEASES. (CONT. SCHEDULE O) FOR OVER 70 YEARS, MDA HAS LED THE WAY IN ACCELERATING RESEARCH, ADVANCING CARE, AND ADVOCATING FOR THE SUPPORT OF OUR FAMILIES. MDA'S MISSION IS TO EMPOWER THE PEOPLE WE SERVE TO LIVE LONGER, MORE INDEPENDENT LIVES.

Revisions to this organization profile

May 1, 2024:
2023 Muscular Dystrophy Association Inc. 990 filed
May 25, 2023:
2022 Muscular Dystrophy Association Inc. 990 filed
August 2, 2022:
2021 Muscular Dystrophy Association Inc. 990 filed

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