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Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

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Organizations Diseases, Disorders & Medical Muscular Dystrophy Association Inc.

Muscular Dystrophy Association Inc.

Fiscal year ending 2017. Filed on November 15, 2018.

161 N Clark St Suite 3550
Street Box 49
Chicago, Illinois 60601

Muscular Dystrophy Association Inc. (EIN: 13-1665552) has filed an IRS Form 990 between fiscal years 2016 and 2023. In its fiscal year 2017 IRS Form 990 filing, Muscular Dystrophy Association Inc., a 501(c)(3) charitable organization, reported compensation for 12 out of 939 total employees. Among the employees shown here, the average compensation is $278,507. The highest compensated employee at Muscular Dystrophy Association Inc. is Steven M Derks with fiscal year 2017 compensation of $1,091,830.

Revenue, expenses, and employee compensation

Revenue

$117,485,260

Expenses

$112,083,570

Employee compensation

$56,599,128
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Steven M Derks
President and Chief Executive Officer
$1,091,830
$1,088,326 No related comp$3,504
Karen Alexander
Evp,Chief Impact/Philan.Office
$368,456
$357,243 No related comp$11,213
Julie Faber, Cpa
ASST Treasurer and CFO
$247,989
$240,628 No related comp$7,361
Kristine Welker
Interim PRES and CEO (Feb-Sept)
$211,207
$211,207 No related compNo other comp
Grace K Pavlath, Ph.D.
Senior Vice President Scientific Program Director
$209,460
$197,227 No related comp$12,233
Eileen Timmins, Ph.D.
Asst.Sec.Evp Chief PPL Officer
$209,065
$194,724 No related comp$14,341
Gail Schmertz Kerner, Esq
Senior Vice President and General Counsel
$207,571
$189,068 No related comp$18,503
Nancy Stinson Harris
NVP of CORP Partnerships
$196,074
$188,168 No related comp$7,906
John Walsh
Division Chief Executive
$185,557
$167,054 No related comp$18,503
Kristin Stephenson
Svp,Chief Pol&Comm ENG Officer
$174,887
$156,384 No related comp$18,503
Natalie Stamer
Vice President of Digital and Content Market
$165,826
$144,803 No related comp$21,023
Valerie A Cwik, M.D.
ASST SEC Chief MED Scientifi
$74,157
$74,157 No related compNo other comp

Benchmark Employee Compensation

Non-Employee Board Members

Bart Conner
Director Emeritus
Benjamin Cumbo III
Director
Charles D Schoor, Esq
Secretary
Christopher J Rosa, Ph.D.
Vice Chair
Daniel G Fries
Director
Dave Hutton
Director
Governor Brad Henry
Director
Harold Crump
Director Emeritus
John Tognino
Director
Joseph S Dimartino
Director Emeritus
Lilian Wu, Ph.D.
Director
Louis Kunkel, Ph.D.
Director

Contractors

Egl Genetic Diagnostics LLC
Genetic Testing
$576,900
Hyatt Regency Crystal City
Hotel
$319,724
Involta LLC
IT
$197,876
Holland Knight
Legal
$172,036
Randstad Staffing Services
Temporary Staffing
$167,567

Mission Statement

MUSCULAR DYSTROPHY ASSOCIATION (MDA) IS THE #1 VOLUNTARY HEALTH ORGANIZATION IN THE UNITED STATES FOR PEOPLE LIVING WITH MUSCULAR DYSTROPHY, ALS, AND RELATED NEUROMUSCULAR DISEASES. (CONT. SCHEDULE O) FOR OVER 70 YEARS, MDA HAS LED THE WAY IN ACCELERATING RESEARCH, ADVANCING CARE, AND ADVOCATING FOR THE SUPPORT OF OUR FAMILIES. MDA'S MISSION IS TO EMPOWER THE PEOPLE WE SERVE TO LIVE LONGER, MORE INDEPENDENT LIVES.

Revisions to this organization profile

May 1, 2024:
2023 Muscular Dystrophy Association Inc. 990 filed
May 25, 2023:
2022 Muscular Dystrophy Association Inc. 990 filed
August 2, 2022:
2021 Muscular Dystrophy Association Inc. 990 filed

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