Compensation 990

Muscular Dystrophy Association Inc.

Fiscal year ending 2020. Filed on October 25, 2021.

161 N Clark St No 3550
1150
Chicago, Illinois 60601

Muscular Dystrophy Association Inc. (EIN: 13-1665552) has filed an IRS Form 990 between fiscal years 2016 and 2023. In its fiscal year 2020 IRS Form 990 filing, Muscular Dystrophy Association Inc., a 501(c)(3) charitable organization, reported compensation for 13 out of 593 total employees. Among the employees shown here, the average compensation is $289,628. The highest compensated employee at Muscular Dystrophy Association Inc. is Ellen Vos with fiscal year 2020 compensation of $853,207.

Revenue, expenses, and employee compensation

Revenue

$63,707,273

Expenses

$68,372,442

Employee compensation

$31,271,925
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Ellen Vos
President and CEO (Jan-Oct)
$853,207
$823,260 from orgNo related comp$29,947 other
Karen Andrews
SEC and Chief Legal Officer (Jan-Oct)
$382,063
$382,063 from orgNo related compNo other comp
Kathy Kauffmann
Chief Strategy Development Officer
$363,582
$325,534 from orgNo related comp$38,048 other
Michael Kennedy
Chief Financial Officer and Treasurer
$310,882
$280,612 from orgNo related comp$30,270 other
Kristin Stephenson
Chief Advocacy and CARE Services Officer
$259,510
$228,161 from orgNo related comp$31,349 other
Jonathon Nagle
Chief Technology Officer
$244,715
$221,784 from orgNo related comp$22,931 other
Jeanne Zucker
Senior Vice President Healthcare Partnerships
$243,341
$230,581 from orgNo related comp$12,760 other
Sharon Hesterlee
Chief Research Officer
$239,396
$215,353 from orgNo related comp$24,043 other
Deborah Barge
Senior Vice President, Chief Field Officer
$235,606
$234,488 from orgNo related comp$1,118 other
Joshua Ackley
Vice President of PR and Communications
$229,223
$219,512 from orgNo related comp$9,711 other
Jennifer Allebach
Senior Vice President of CAMP Programs (Jan-Nov)
$203,388
$200,697 from orgNo related comp$2,691 other
Lindsay Kassof
SEC and Assoc Legal COUN (Nov-Dec)
$185,593
$169,755 from orgNo related comp$15,838 other

Non-Employee Board Members

Anjan Aralihalli
Director
Ankur Ghia
Director
Benjamin Cumbo III
Director
Charles D Schoor, Esq
Director
Elizabeth McNally, M.D., Ph.D.
Director
Eugene Williams
Director
Governor Brad Henry
Vice Chair
Hon Robert E Pipia
Director
Jennifer Gottlieb
Director
John Costantino
Director
John E Howell
Director
John Tognino
Director

Mission Statement

MUSCULAR DYSTROPHY ASSOCIATION (MDA) IS THE #1 VOLUNTARY HEALTH ORGANIZATION IN THE UNITED STATES FOR PEOPLE LIVING WITH MUSCULAR DYSTROPHY, ALS, AND RELATED NEUROMUSCULAR DISEASES. (CONT. SCHEDULE O) FOR OVER 70 YEARS, MDA HAS LED THE WAY IN ACCELERATING RESEARCH, ADVANCING CARE, AND ADVOCATING FOR THE SUPPORT OF OUR FAMILIES. MDA'S MISSION IS TO EMPOWER THE PEOPLE WE SERVE TO LIVE LONGER, MORE INDEPENDENT LIVES.

Revisions to this organization profile

May 1, 2024:
2023 Muscular Dystrophy Association Inc. 990 filed
May 25, 2023:
2022 Muscular Dystrophy Association Inc. 990 filed
August 2, 2022:
2021 Muscular Dystrophy Association Inc. 990 filed

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