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Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

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Organizations Diseases, Disorders & Medical Muscular Dystrophy Association Inc.

Muscular Dystrophy Association Inc.

Fiscal year ending 2023. Filed on May 1, 2024.

1016 W Jackson Blvd 1073
Street Box 49
Chicago, Illinois 60607

Muscular Dystrophy Association Inc. (EIN: 13-1665552) has filed an IRS Form 990 between fiscal years 2016 and 2023. In its fiscal year 2023 IRS Form 990 filing, Muscular Dystrophy Association Inc., a 501(c)(3) charitable organization, reported compensation for 8 out of 242 total employees. Among the employees shown here, the average compensation is $298,186. The highest compensated employee at Muscular Dystrophy Association Inc. is Donald Wood with fiscal year 2023 compensation of $523,946.

Revenue, expenses, and employee compensation

Revenue

$59,437,892

Expenses

$62,127,770

Employee compensation

$26,112,512
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Donald Wood
President and Chief Executive Officer
$523,946
$490,624 No related comp$33,322
Michael Kennedy
Chief Financial Officer and Treasurer
$379,259
$334,979 No related comp$44,280
Henry Lanman
SEC and Chief Legal Officer
$367,898
$357,404 No related comp$10,494
Sharon Hesterlee
Chief Research Officer
$277,431
$237,040 No related comp$40,391
Peripedes Gondim
Vice President, Human Resources and Volunteers
$230,859
$223,723 No related comp$7,136
Nora Capocci
Vice President, Healthcare Services
$204,618
$198,041 No related comp$6,577
Monica Pappas
Vice President, Technology
$201,049
$195,958 No related comp$5,091
Angela Lek
Vice President, Research
$200,429
$194,037 No related comp$6,392

Benchmark Employee Compensation

Non-Employee Board Members

Anjan Aralihalli
Director
Ankur Ghia
Outgoing Director
Benjamin Cumbo III
Director
Charles D Schoor, Esq
Director
Chris Rosa
Vice Chair
Dan Fries
Director
Elizabeth McNally, M.D., Ph.D.
Director
Eugene Williams
Outgoing Director
Governor Brad Henry
Chair
Hon Robert E Pipia
Director
Jennifer Gottlieb
Director
John Costantino
Director

Contractors

Glc Part of Spm Group
Content Marketing Agency
$687,825
Data Axle Inc.
Marketing
$358,741
The Pursuant Group
Fundraising Consultant
$349,000
1ST Degree LLC
Marketing
$143,925
Morgan Lewis & Bockius LLP
Legal Advice
$129,070

Mission Statement

MUSCULAR DYSTROPHY ASSOCIATION (MDA) IS THE #1 VOLUNTARY HEALTH ORGANIZATION IN THE UNITED STATES FOR PEOPLE LIVING WITH MUSCULAR DYSTROPHY, ALS, AND RELATED NEUROMUSCULAR DISEASES. (CONT. SCHEDULE O) FOR OVER 70 YEARS, MDA HAS LED THE WAY IN ACCELERATING RESEARCH, ADVANCING CARE, AND ADVOCATING FOR THE SUPPORT OF OUR FAMILIES. MDA'S MISSION IS TO EMPOWER THE PEOPLE WE SERVE TO LIVE LONGER, MORE INDEPENDENT LIVES.

Revisions to this organization profile

May 1, 2024:
2023 Muscular Dystrophy Association Inc. 990 filed
May 25, 2023:
2022 Muscular Dystrophy Association Inc. 990 filed
August 2, 2022:
2021 Muscular Dystrophy Association Inc. 990 filed

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