Compensation 990

Muscular Dystrophy Association Inc.

Fiscal year ending 2019. Filed on September 21, 2020.

161 N Clark St No 3550
1150
Chicago, Illinois 60601

Muscular Dystrophy Association Inc. (EIN: 13-1665552) has filed an IRS Form 990 between fiscal years 2016 and 2023. In its fiscal year 2019 IRS Form 990 filing, Muscular Dystrophy Association Inc., a 501(c)(3) charitable organization, reported compensation for 10 out of 786 total employees. Among the employees shown here, the average compensation is $285,805. The highest compensated employee at Muscular Dystrophy Association Inc. is Ellen Vos with fiscal year 2019 compensation of $536,247.

Revenue, expenses, and employee compensation

Revenue

$100,972,775

Expenses

$112,749,799

Employee compensation

$47,805,447
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Ellen Vos
President and Chief Executive Officer
$536,247
$508,029 from orgNo related comp$28,218 other
Karen Andrews
Secretary and Chief Legal Officer
$413,969
$413,969 from orgNo related compNo other comp
Adam Cotumaccio
Chief Impact and Philanthropy Officer
$330,623
$284,234 from orgNo related comp$46,389 other
Michael Kennedy
Chief Financial Officer and Treasurer
$323,044
$287,333 from orgNo related comp$35,711 other
Jeanne Zucker
Senior Vice President, Healthcare PART
$271,422
$260,422 from orgNo related comp$11,000 other
Kristin Stephenson
Senior Vice President, Chief Policy and COMM E
$243,705
$203,107 from orgNo related comp$40,598 other
Michael Bruno
Chief People and Administrative Officer
$227,668
$214,376 from orgNo related comp$13,292 other
Meredith Wilson
Vice President, Healthcare Communications and Education
$187,834
$179,647 from orgNo related comp$8,187 other
Kathy Kauffmann
Chief Strategy Development Officer
$170,318
$152,342 from orgNo related comp$17,976 other
Jennifer Allebach
Senior Vice President of Recreation and CAMP Programs
$153,217
$150,209 from orgNo related comp$3,008 other

Non-Employee Board Members

Anjan Aralihalli
Director
Ankur Ghia
Director
Benjamin Cumbo III
Director
Charles D Schoor, Esq
Director
Christopher J Rosa, Ph.D.
Vice Chair
Daniel G Fries
Director
Dave Hutton
Director
Don Wood
Director
Elizabeth McNally, M.D., Ph.D.
Director
Eugene Williams
Director
Governor Brad Henry
Director
John Costantino
Director

Contractors

Tyler Haines Cunningham
Marketing
$311,959
Erick James Soderstrom
Marketing
$208,000
Sibson Consulting
Pension Management
$172,900
Deb Barge
Consulting
$140,000
Ellen Shedlarz
Consulting
$120,961

Mission Statement

MUSCULAR DYSTROPHY ASSOCIATION (MDA) IS THE #1 VOLUNTARY HEALTH ORGANIZATION IN THE UNITED STATES FOR PEOPLE LIVING WITH MUSCULAR DYSTROPHY, ALS, AND RELATED NEUROMUSCULAR DISEASES. (CONT. SCHEDULE O) FOR OVER 70 YEARS, MDA HAS LED THE WAY IN ACCELERATING RESEARCH, ADVANCING CARE, AND ADVOCATING FOR THE SUPPORT OF OUR FAMILIES. MDA'S MISSION IS TO EMPOWER THE PEOPLE WE SERVE TO LIVE LONGER, MORE INDEPENDENT LIVES.

Revisions to this organization profile

May 1, 2024:
2023 Muscular Dystrophy Association Inc. 990 filed
May 25, 2023:
2022 Muscular Dystrophy Association Inc. 990 filed
August 2, 2022:
2021 Muscular Dystrophy Association Inc. 990 filed

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