Compensation 990
OrganizationsEmployeesBoard MembersGrantsContractorsTop RankingsPricing

Stay updated on 990 organization compensation

© Civic Register LLC

Compensation 990 is an independent service that uses public IRS Form 990 filings as its source data. We clean and standardize this information, but the original filings may contain errors or omissions. Years on this site refer to the organization’s fiscal year end date on the filing.

About•Report a discrepancy•Your privacy choices
Organizations Diseases, Disorders & Medical Myotonic Dystrophy Foundation Inc.

Myotonic Dystrophy Foundation Inc.

Fiscal year ending 2019. Filed on July 2, 2020.

663 Thirteenth Street Suite 100
Oakland, California 94612

Myotonic Dystrophy Foundation Inc. (EIN: 20-5014628) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2019 IRS Form 990 filing, Myotonic Dystrophy Foundation Inc., a 501(c)(3) charitable organization, reported compensation for 2 out of 5 total employees. Among the employees shown here, the average compensation is $192,944. The highest compensated employee at Myotonic Dystrophy Foundation Inc. is Molly White with fiscal year 2019 compensation of $244,046.

Revenue, expenses, and employee compensation

Revenue

$2,271,866

Expenses

$2,248,284

Employee compensation

$598,551
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Molly White
Chief Executive Officer
$244,046
$224,747 No related comp$19,299
Leah Hellerstein
Program Director
$141,841
$131,178 No related comp$10,663

Benchmark Employee Compensation

Non-Employee Board Members

David Berman
Director
David Herbert
Treasurer
Elizabeth Florence
Secretary
Jeremy Kelly
Chair
Joel Revill
Director
John Fitzpatrick
Director
Martha Montag Brown
Vice Chair

Mission Statement

To lead and mobilize resources toward effective management, treatment and ultimately a cure for myotonic dystrophy through education, advocacy and research.

Revisions to this organization profile

November 4, 2025:
2024 Myotonic Dystrophy Foundation Inc. 990 filed
November 14, 2024:
2023 Myotonic Dystrophy Foundation Inc. 990 filed
November 15, 2023:
2022 Myotonic Dystrophy Foundation Inc. 990 filed

Get an email when new compensation information is released for Myotonic Dystrophy Foundation Inc.

Be the first to know when new IRS Form 990 data is published for this organization.

Related Jobs

View more jobs
Powered by Talroo
Report a discrepancy →