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Organizations Diseases, Disorders & Medical National Down Syndrome Congress

National Down Syndrome Congress

Fiscal year ending 2024. Filed on September 3, 2025.

3825 Edwards Rd Ste 103
Cincinnati, Ohio 45209

National Down Syndrome Congress (EIN: 51-0163631) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2024 IRS Form 990 filing, National Down Syndrome Congress, a 501(c)(3) charitable organization, reported compensation for 2 out of 12 total employees. Among the employees shown here, the average compensation is $103,520. The highest compensated employee at National Down Syndrome Congress is Stephanie Smith Lee with fiscal year 2024 compensation of $112,280.

Revenue, expenses, and employee compensation

Revenue

$1,734,848

Expenses

$1,653,010

Employee compensation

$464,071
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Stephanie Smith Lee
Policy/Advocacy Co-Director
$112,280
$112,280 No related compNo other comp
James Hudson
Executive Director
$94,760
$86,973 No related comp$7,787

Benchmark Employee Compensation

Non-Employee Board Members

Andre Pineda
Treasurer
Anthony Zanfordino
First Vice President
Beau Brooks
Second Vice President
Beth Foraker
Director
Bradley Carlisle
Director
Clair Wallace
Director
Craig Blackburn
Director
David Chaplin
Secretary
Hannah Lacour
Director
MacArena Lizama, M.D.
Director
Marilyn Tolbert
Former President
Nicole Baumer
Fourth Vice President

Contractors

Image Audiovisuals
Audiovisual
$186,981

Mission Statement

THE MISSION OF THE NATIONAL DOWN SYNDROME CONGRESS IS TO PROVIDE INFORMATION, ADVOCACY, AND SUPPORT CONCERNING ALL ASPECTS OF LIFE FOR INDIVIDUALS WITH DOWN SYNDROME.NDSC EXISTS WITH THE PURPOSE TO PROMOTE THE INTERESTS OF PEOPLE WITH DOWN SYNDROME, TO EDUCATE THROUGH AWARENESS, TO ADVOCATE AND ENSURE THEIR RIGHTS ARE RECOGNIZED AND PROTECTED, TO EMPOWER, AND TO INSPIRE AND RESHAPE THE WAY PEOPLE UNDERSTAND AND EXPERIENCE DOWN SYNDROME.THE VISION OF THE NDSC IS A WORLD WITH EQUAL RIGHTS AND OPPORTUNITIES FOR PEOPLE WITH DOWN SYNDROME.

Revisions to this organization profile

September 3, 2025:
2024 National Down Syndrome Congress 990 filed
November 14, 2024:
2023 National Down Syndrome Congress 990 filed
November 14, 2024:
Amended (originally filed November 28, 2023)2022 National Down Syndrome Congress 990 filed

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