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Organizations Diseases, Disorders & Medical National Down Syndrome Congress

National Down Syndrome Congress

Fiscal year ending 2023. Filed on November 14, 2024.

30 Mansell Court 108
Roswell, Georgia 30076

National Down Syndrome Congress (EIN: 51-0163631) has filed an IRS Form 990 since at least fiscal year 2016. In its fiscal year 2023 IRS Form 990 filing, National Down Syndrome Congress, a 501(c)(3) charitable organization, reported compensation for 1 out of 13 total employees. Among the employees shown here, the average compensation is $134,326. The highest compensated employee at National Down Syndrome Congress is Jordan Kough with fiscal year 2023 compensation of $134,326.

Revenue, expenses, and employee compensation

Revenue

$1,931,676

Expenses

$1,934,348

Employee compensation

$712,040
Revenue, expenses, and employee compensation over time

Reported Compensated Employees

Jordan Kough
Executive Director
$134,326
$130,808 No related comp$3,518

Benchmark Employee Compensation

Non-Employee Board Members

Andre Pineda
Treasurer
Andrea Holmes
Director
Anthony Zanfordino
First Vice President
Beau Brooks
Second Vice President
Bradley Carlisle
Director
Craig Blackburn
Director
Dana Halle, Esq
Third Vice President
Daniel Chaplin
Director
David Chaplin
Secretary
Jenny Stone
Director
MacArena Lizama, M.D.
Director
Marilyn Tolbert
Former President

Mission Statement

THE MISSION OF THE NATIONAL DOWN SYNDROME CONGRESS IS TO PROVIDE INFORMATION, ADVOCACY, AND SUPPORT CONCERNING ALL ASPECTS OF LIFE FOR INDIVIDUALS WITH DOWN SYNDROME.NDSC EXISTS WITH THE PURPOSE TO PROMOTE THE INTERESTS OF PEOPLE WITH DOWN SYNDROME, TO EDUCATE THROUGH AWARENESS, TO ADVOCATE AND ENSURE THEIR RIGHTS ARE RECOGNIZED AND PROTECTED, TO EMPOWER, AND TO INSPIRE AND RESHAPE THE WAY PEOPLE UNDERSTAND AND EXPERIENCE DOWN SYNDROME.THE VISION OF THE NDSC IS A WORLD WITH EQUAL RIGHTS AND OPPORTUNITIES FOR PEOPLE WITH DOWN SYNDROME.

Revisions to this organization profile

September 3, 2025:
2024 National Down Syndrome Congress 990 filed
November 14, 2024:
2023 National Down Syndrome Congress 990 filed
November 14, 2024:
Amended (originally filed November 28, 2023)2022 National Down Syndrome Congress 990 filed

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